Family Caregivers of Children With Medical Complexity: Health-Related Quality of Life and Experiences of Care Coordination

Objective To examine the association between care coordination experiences of family caregivers of children with medical complexity (CMC) and caregivers’ health-related quality of life (HR-QOL). Methods From July 2018 to July 2019, family caregivers of CMC completed an electronic survey (n = 136) at the time of initial contact with a regional complex care medical home. Information on caregiver HR-QOL and receipt of care coordination services...