APPLaUD: access for patients and participants to individual level uninterpreted genomic data
Abstract
There is a growing support for the stance that patients and research participants should have better and easier access to their raw (uninterpreted) genomic sequence data in both clinical and research contexts. We review legal frameworks and literature on the benefits, risks, and practical barriers of providing individuals access to their data. We also survey genomic sequencing initiatives that provide or plan to provide individual access. Many...
Paper Details
Title
APPLaUD: access for patients and participants to individual level uninterpreted genomic data
Published Date
Feb 17, 2018
Journal
Volume
12
Issue
1
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