Patient participation as an integral part of patient-reported outcomes development ensures the representation of the patient voice: a case study from the field of rheumatology

Introduction

Patient-reported outcomes (PROs) are important instruments to evaluate healthcare interventions, both in clinical practice and clinical research.

Objective

To describe how representation of the perspective of people with psoriatic arthritis was obtained through active participation on different levels in the development of PROs.

Methods

This case study focuses on the methods of involving patients in the...