eHealth Services for the European Reference Network on Rare Anaemias (eENERCA).
Abstract
This paper presents an electronic registry system for the purposes of the eENERCA for rare congenital conditions that require lifelong follow up and treatment. The main objective of the eENERCA project focusses on the prevention of major rare anaemias (RAs) by facilitating the access, at a European level, to the best genetic counselling, diagnosis and clinical management of the patients with RA independently of their country of origin. This can...
Paper Details
Title
eHealth Services for the European Reference Network on Rare Anaemias (eENERCA).
Published Date
Jan 1, 2015
Journal
Volume
213
Pages
153 - 6
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Notes
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