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Engagement design in studies on pregnancy and infant health using social media: Systematic review.

Published on May 8, 2020in Preventive medicine reports
· DOI :10.1016/J.PMEDR.2020.101113
Carol Shieh12
Estimated H-index: 12
(IU: Indiana University),
Israt Khan (IU: Indiana University), Rachel A. Umoren8
Estimated H-index: 8
(UW: University of Washington)
Abstract
: Social media utilization is prevalent among reproductive-age women. The literature on how researchers engage women in studies using social media platforms is scarce. This systematic review analyzed participant engagement design in studies using social media and focused on pregnancy and infant health. METHODS: A literature search of EBSCO and PubMed databases was conducted. Included studies had to be completed with quantitative data, focus on pregnancy, postpartum or infant health, and use social media in the research process. A matrix of three engagement designs (passive, interactive, independent) and three research processes (recruitment, data analysis, intervention) was used for analysis. FINDINGS: Thirty-one articles that reported 30 studies met the inclusion criteria. Of these, four were randomized controlled trials (RCT), four were non-RCT interventions, and 22 were observational/descriptive studies. The main purpose of using social media was for recruitment (n = 16), data analysis (n = 6), intervention (n = 8), or both recruitment and intervention (n = 1). Passive engagement was a fundamental design approach in all studies to access a data source that was either the participant or the data provided by the participants in social media. Interactive engagement, mostly for recruitment and intervention, was to engage participants in completing study enrollment or in interacting with the study team or fellow participants. Independent engagement involved off-line activities and appeared sporadically in intervention studies. CONCLUSIONS: Passive and interactive engagement designs are more frequently used than independent engagement design. Researchers should select suitable designs when studying pregnancy and infant health using social media.
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#1M.M.H.J. van Gelder (Radboud University Nijmegen)H-Index: 2
#2T.H. van de Belt (Radboud University Nijmegen)H-Index: 4
Last. Nel Roeleveld (Radboud University Nijmegen)H-Index: 40
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Objectives Several types of epidemiologic studies suffer from decreasing participation rates, resulting in potential selection bias and delay or termination of studies. We aimed to determine the feasibility of online methods for recruitment of pregnant women into a prospective cohort study. Methods In addition to traditional recruitment through prenatal care providers, we advertized participation in the PRegnancy and Infant DEvelopment (PRIDE) Study, an ongoing prospective cohort study with long...
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#1Kirsten MacDonnell (UVA: University of Virginia)H-Index: 2
#2Emily Cowen (UVA: University of Virginia)H-Index: 1
Last. Karen S. Ingersoll (UVA: University of Virginia)H-Index: 24
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#1Danielle M. Gleeson (University of the Sunshine Coast)H-Index: 1
#2Alison Craswell (University of the Sunshine Coast)H-Index: 6
Last. Christian Jones (University of the Sunshine Coast)H-Index: 12
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Abstract Background Social support is essential in both the transition to motherhood and maternal role development. With diminishing access to traditional communities of motherhood wisdom, women struggle to access this information in their tangible worlds. Aim This paper presents a review of the research literature investigating childbearing women’s use of social networking sites related to pregnancy and parenting and how these may influence women’s experiences of the childbearing period. Method...
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#1Tanya Byker (Middlebury College)H-Index: 4
#2Caitlin Knowles Myers (Middlebury College)H-Index: 10
Last. Maura GraffH-Index: 1
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Abstract Objective To test whether an informational campaign carried out on social media increased use of long-acting reversible contraception (LARC). Study design We implemented a stratified cluster randomized control trial to identify the effect of an informational campaign carried out using Facebook advertisements designed to increase knowledge of the efficacy, ease of use and safety of LARC. We randomized all zip codes in a three-state study area to either a control group or a treatment grou...
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: The support offered to mothers after hospital discharge can be decisive in maintaining exclusive breastfeeding during the first 6 months post-partum. The objective of this study was to assess the impact on the duration of exclusive breastfeeding of a participatory intervention using an online social network. A randomized clinical trial was performed involving 251 mother-child pairings in a university hospital in the Northeast of Brazil, 123 of which assigned to the intervention group and 128 t...
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#1Kelly Pretorius (University of Texas at Austin)H-Index: 2
#2Karen E. Johnson (University of Texas at Austin)H-Index: 9
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#1Elizabeth Marshall (UM: University of Michigan)H-Index: 1
#2Margaret Abigail Moon (UM: University of Michigan)H-Index: 1
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#1Christine B. Williams (UCSD: University of California, San Diego)H-Index: 4
#2D. Yvette LaCoursiere (UCSD: University of California, San Diego)H-Index: 16
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Introduction Obesity rates among US Hispanic women and children are high. Childhood obesity prevention beginning prenatally is desirable, but studies show mixed results. Methods We tested a pilot intervention to promote optimal gestational and infant weight with primigravid Hispanic women at a Federally Qualified Health Center (FQHC) on the U.S.-Mexico border. The intervention included promotora-led exercise, nutrition, breastfeeding activities (n = 23), supported by text/social media messaging ...
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#2Stephanie ChiuveH-Index: 1
Last. Graciela Gonzalez-Hernandez (UPenn: University of Pennsylvania)H-Index: 7
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Introduction Adverse effects of medications taken during pregnancy are traditionally studied through post-marketing pregnancy registries, which have limitations. Social media data may be an alternative data source for pregnancy surveillance studies.
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