Public interest in health data research: laying out the conceptual groundwork
Abstract
The future of health research will be characterised by three continuing trends: rising demand for health data; increasing impracticability of obtaining specific consent for secondary research; and decreasing capacity to effectively anonymise data. In this context, governments, clinicians and the research community must demonstrate that they can be responsible stewards of health data. IRBs and RECs sit at heart of this process because in many...
Paper Details
Title
Public interest in health data research: laying out the conceptual groundwork
Published Date
May 6, 2020
Journal
Volume
46
Issue
9
Pages
610 - 616
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