Exploring relatives’ perceptions of participation, ethics, and communication in a patient‐driven study for hereditary cancer variant reclassification

Volume: 29, Issue: 5, Pages: 857 - 866
Published: Jan 9, 2020
Abstract
Effective communication of genetic information within families depends on several factors. Few studies explore intra‐familial communication of variant of uncertain significance (VUS) results or active collaboration between family members to classify VUS. Our qualitative study aimed to describe the experiences of individuals asked by family members to participate in the FindMyVariant study, a patient‐driven family study which aimed to reclassify...
Paper Details
Title
Exploring relatives’ perceptions of participation, ethics, and communication in a patient‐driven study for hereditary cancer variant reclassification
Published Date
Jan 9, 2020
Volume
29
Issue
5
Pages
857 - 866
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