Regulating the Secondary Use of Data for Research: Arguments Against Genetic Exceptionalism

As accessing, collecting and storing personal information becomes increasingly easier, the secondary use of data has the potential to make healthcare research more cost and time effective. The widespread reuse of data, however, raises important ethical and policy issues, especially because of the sensitive nature of genetic and health-related information. Regulation is thus crucial to determine the conditions upon which data can be reused. In...