Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study
Abstract
Genetics in paediatric oncology is becoming increasingly important in diagnostics, treatment and follow-up care. Genetic testing may offer a possibility to stratify survivors follow-up care. However, survivors’ and parents’ preferences and needs for genetics-related services are largely unknown. This mixed-methods study assessed genetics-related information and service needs of survivors and parents. Six hundred and twenty-two participants (404...
Paper Details
Title
Genetics-related service and information needs of childhood cancer survivors and parents: a mixed-methods study
Published Date
Jul 30, 2019
Volume
28
Issue
1
Pages
6 - 16
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