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Patient autonomy in home care: Nurses’ relational practices of responsibility

Published on May 7, 2018in Nursing Ethics1.96
· DOI :10.1177/0969733018772070
Gabriele Belschak-Jacobs13
Estimated H-index: 13
(Fontys University of Applied Sciences)
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Abstract
Background:Over the last decade, new healthcare policies are transforming healthcare practices towards independent living and self-care of older people and people with a chronic disease or disability within the community. For professional caregivers in home care, such as nurses, this requires a shift from a caring attitude towards the promotion of patient autonomy.Aim:To explore how nurses in home care deal with the transformation towards fostering patient autonomy and self-care.Research design and context:A case study was conducted in a professional development course (‘learning circle’) for home care nurses, including participant observations and focus groups. The theoretical notion of ‘relational agency’ and the moral concept of ‘practices of responsibility’ were used to conduct a narrative analysis on the nurses’ stories about autonomy.Participants:Eight nurses, two coaches and two university lecturers who participated in the learning circle.Ethical considerations:Informed consent was sought at the st...
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  • Citations (2)
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References27
Newest
Published on Mar 1, 2017in Health Care Analysis1.04
Laura Pritchard-Jones3
Estimated H-index: 3
(University of Manchester)
Ageism within the context of care has attracted increasing attention in recent years. Similarly, autonomy has developed into a prominent concept within health care law and ethics. This paper explores the way that ageism, understood as a set of negative attitudes about old age or older people, may impact on an older person’s ability to make maximally autonomous decisions within health care. In particular, by appealing to feminist constructions of autonomy as relational, I will argue that the key ...
Published on Dec 1, 2016in Nursing Ethics1.96
Dara Rasoal3
Estimated H-index: 3
(Örebro University),
Annica Kihlgren16
Estimated H-index: 16
(Örebro University)
+ 1 AuthorsMia Svantesson12
Estimated H-index: 12
(Örebro University)
Background:Ethically difficult situations are frequently encountered by healthcare professionals. Moral case deliberation is one form of clinical ethics support, which has the goal to support staff to manage ethical difficulties. However, little is known which difficult situations healthcare teams need to discuss.Aim:To explore which kinds of ethically difficult situations interprofessional healthcare teams raise during moral case deliberation.Research design:A series of 70 moral case deliberati...
Published on Apr 18, 2016in Journal of Integrated Care
Tessa Trappes‐Lomax2
Estimated H-index: 2
(University of Exeter)
Purpose – Long-term health problems put great pressures on health and social care services. Supporting “self-care” has measurable benefits in helping patients cope better, but is difficult to do in practice. The purpose of this paper is to help improve services by exploring existing evidence about the views of patients and general practitioners. Design/methodology/approach – The search terms were identified following detailed discussion with service users. Five databases (PUBMED, CINAHL, TRIP, S...
Published on Jan 1, 2016in Journal of Clinical Nursing1.76
Mandy Wilkinson1
Estimated H-index: 1
(University of Otago),
Lisa Whitehead21
Estimated H-index: 21
(ECU: Edith Cowan University),
Marie Crowe23
Estimated H-index: 23
(University of Otago)
Aims and objectives This study explored nurses' attitudes, views and beliefs about their role in long-term condition self-management. Background Nurses are well-placed to assist individuals in long-term condition self-management. Yet, there is limited research exploring underlying beliefs of nurses regarding their role in long-term condition self-management and how those beliefs may impact on the practice of self-management. Design A descriptive, cross-sectional qualitative design. Participants ...
Published on Dec 1, 2015in Journal of Advanced Nursing2.38
J.M.J. Been-Dahmen3
Estimated H-index: 3
(Rotterdam University of Applied Sciences),
Jolanda Dwarswaard7
Estimated H-index: 7
(Rotterdam University of Applied Sciences)
+ 2 AuthorsErwin Ista18
Estimated H-index: 18
(EUR: Erasmus University Rotterdam)
Aims To unravel outpatient nurses' views on the role of people with chronic conditions in self-management, nurses' own support role and to establish how these views relate to nurse-led self-management interventions. Background Providing self-management support is a core task of nurses in outpatient chronic care. However, the concept of self-management is interpreted in different ways and little is known about nurses' views on patients' role in self-management and nurses' own support role. Design...
Published on Sep 1, 2015in Patient Education and Counseling2.82
Jolanda Dwarswaard7
Estimated H-index: 7
(Rotterdam University of Applied Sciences),
Hester van de Bovenkamp11
Estimated H-index: 11
(EUR: Erasmus University Rotterdam)
Abstract Objective Policymakers increasingly focus their attention on stimulating patients’ self-management. Critical reflection on this trend is often limited. A focus on self-management does not only change nurses’ activities, but also the values underlying the nurse–patient relationship. The latter can result in ethical dilemmas. Methods In order to identify possible dilemmas a qualitative study consisting of semi-structured interviews was conducted. Six experts on self-management and medical...
Hannah Ml Young7
Estimated H-index: 7
(University Hospitals of Leicester NHS Trust),
Lindsay Apps8
Estimated H-index: 8
(University Hospitals of Leicester NHS Trust)
+ 3 AuthorsSally Singh40
Estimated H-index: 40
(University Hospitals of Leicester NHS Trust)
Author contributions HMLY carried out the data analysis and data interpretation. SLH and LDA carried out the data analysis and assisted with data interpretation. VLJW conducted the data collection. NH and SJS designed the study and assisted with data interpretation. SJS conceived of the study. All authors assisted in drafting, revising and approving the final manuscript. All authors accept accountability for all aspects of the final manuscript. Disclosure The authors report no conflicts of inter...
Published on Dec 1, 2014in Journal of Aging Studies1.35
L. Claassens2
Estimated H-index: 2
(VU: VU University Amsterdam),
Guy Widdershoven33
Estimated H-index: 33
(VU: VU University Amsterdam)
+ 4 AuthorsMartijn Huisman34
Estimated H-index: 34
(VU: VU University Amsterdam)
Frail older adults are increasingly encouraged to be in control of their health care, in Western societies. However, little is known about how they themselves perceive control in health care. Therefore, this study aims to investigate the concept of health care-related perceived control from the viewpoint of frail older adults. A qualitative interview study was conducted following a Grounded Theory approach. Thirty-two Dutch frail older adults, aged 65 and over, participated in 20 in-depth interv...
Published on Dec 1, 2014in BMC Geriatrics2.82
Isabelle Ottenvall Hammar3
Estimated H-index: 3
,
Synneve Dahlin-Ivanoff21
Estimated H-index: 21
(University of Gothenburg)
+ 1 AuthorsKajsa Eklund14
Estimated H-index: 14
(University of Gothenburg)
Background: Older persons’ right to exercise self-determination in daily life is supported by several laws. Research shows that older persons’ self-determination is not fully respected within the healthcare sector. In order to enable and enhance older persons’ self-determination, extensive knowledge of older persons’ self-determination is needed. The aim of this study was to explore experiences of self-determination when developing dependence in daily activities among community-dwelling persons ...
Published on Oct 1, 2014in Journal of Advanced Nursing2.38
Catharina Lindberg3
Estimated H-index: 3
(BTH: Blekinge Institute of Technology),
Cecilia Fagerström14
Estimated H-index: 14
(BTH: Blekinge Institute of Technology)
+ 1 AuthorsAnia Willman19
Estimated H-index: 19
(BTH: Blekinge Institute of Technology)
Aim. This paper is a report of an analysis of the concept of patient autonomy. Background. Many problems regarding patient autonomy in healthcare contexts derive from the patient's dependent c ...
Cited By2
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Rn Riitta Turjamaa MSc3
Estimated H-index: 3
(University of Eastern Finland),
Aki Pehkonen (University of Eastern Finland), Mari Kangasniemi (UTU: University of Turku)
Published on May 1, 2019in Health & Place3.20
Kitty Suddick4
Estimated H-index: 4
(RMIT: RMIT University),
Vinette Cross1
Estimated H-index: 1
(RMIT: RMIT University)
+ 2 AuthorsKathleen Galvin20
Estimated H-index: 20
(RMIT: RMIT University)
Abstract This hermeneutic phenomenological study was undertaken in response to the recent re-organization of stroke unit provision in the United Kingdom. Through the analysis of four acute stroke unit practitioners' subjective accounts, the acute stroke unit emerged as a dynamic, meaningful space, where they experienced authenticity and belonging. The findings showed how these practitioners navigated their way through the space, thriving, and/or surviving its' associated vulnerabilities. They of...
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