Match!

Patient autonomy in home care: nurses’ relational practices of responsibility.

Published on Sep 1, 2019in Nursing Ethics1.957
· DOI :10.1177/0969733018772070
Gabriele Belschak-Jacobs14
Estimated H-index: 14
(Fontys University of Applied Sciences)
Sources
Abstract
Background:Over the last decade, new healthcare policies are transforming healthcare practices towards independent living and self-care of older people and people with a chronic disease or disability within the community. For professional caregivers in home care, such as nurses, this requires a shift from a caring attitude towards the promotion of patient autonomy.Aim:To explore how nurses in home care deal with the transformation towards fostering patient autonomy and self-care.Research design and context:A case study was conducted in a professional development course (‘learning circle’) for home care nurses, including participant observations and focus groups. The theoretical notion of ‘relational agency’ and the moral concept of ‘practices of responsibility’ were used to conduct a narrative analysis on the nurses’ stories about autonomy.Participants:Eight nurses, two coaches and two university lecturers who participated in the learning circle.Ethical considerations:Informed consent was sought at the st...
  • References (27)
  • Citations (3)
📖 Papers frequently viewed together
9 Citations
20 Citations
78% of Scinapse members use related papers. After signing in, all features are FREE.
References27
Newest
#1Laura Pritchard-Jones (University of Manchester)H-Index: 3
Ageism within the context of care has attracted increasing attention in recent years. Similarly, autonomy has developed into a prominent concept within health care law and ethics. This paper explores the way that ageism, understood as a set of negative attitudes about old age or older people, may impact on an older person’s ability to make maximally autonomous decisions within health care. In particular, by appealing to feminist constructions of autonomy as relational, I will argue that the key ...
5 CitationsSource
#1Dara Rasoal (Örebro University)H-Index: 3
#2Annica Kihlgren (Örebro University)H-Index: 17
Last. Mia Svantesson (Örebro University)H-Index: 13
view all 4 authors...
Background:Ethically difficult situations are frequently encountered by healthcare professionals. Moral case deliberation is one form of clinical ethics support, which has the goal to support staff to manage ethical difficulties. However, little is known which difficult situations healthcare teams need to discuss.Aim:To explore which kinds of ethically difficult situations interprofessional healthcare teams raise during moral case deliberation.Research design:A series of 70 moral case deliberati...
17 CitationsSource
Purpose – Long-term health problems put great pressures on health and social care services. Supporting “self-care” has measurable benefits in helping patients cope better, but is difficult to do in practice. The purpose of this paper is to help improve services by exploring existing evidence about the views of patients and general practitioners. Design/methodology/approach – The search terms were identified following detailed discussion with service users. Five databases (PUBMED, CINAHL, TRIP, S...
2 CitationsSource
#1Mandy Wilkinson (University of Otago)H-Index: 1
#2Lisa Whitehead (ECU: Edith Cowan University)H-Index: 22
Last. Marie Crowe (University of Otago)H-Index: 23
view all 3 authors...
Aims and objectives This study explored nurses' attitudes, views and beliefs about their role in long-term condition self-management. Background Nurses are well-placed to assist individuals in long-term condition self-management. Yet, there is limited research exploring underlying beliefs of nurses regarding their role in long-term condition self-management and how those beliefs may impact on the practice of self-management. Design A descriptive, cross-sectional qualitative design. Participants ...
6 CitationsSource
#1J.M.J. Been-Dahmen (Rotterdam University of Applied Sciences)H-Index: 4
#2Jolanda Dwarswaard (Rotterdam University of Applied Sciences)H-Index: 8
Last. Erwin Ista (EUR: Erasmus University Rotterdam)H-Index: 19
view all 5 authors...
Aims To unravel outpatient nurses' views on the role of people with chronic conditions in self-management, nurses' own support role and to establish how these views relate to nurse-led self-management interventions. Background Providing self-management support is a core task of nurses in outpatient chronic care. However, the concept of self-management is interpreted in different ways and little is known about nurses' views on patients' role in self-management and nurses' own support role. Design...
26 CitationsSource
#1Jolanda Dwarswaard (Rotterdam University of Applied Sciences)H-Index: 8
#2Hester van de Bovenkamp (EUR: Erasmus University Rotterdam)H-Index: 11
Abstract Objective Policymakers increasingly focus their attention on stimulating patients’ self-management. Critical reflection on this trend is often limited. A focus on self-management does not only change nurses’ activities, but also the values underlying the nurse–patient relationship. The latter can result in ethical dilemmas. Methods In order to identify possible dilemmas a qualitative study consisting of semi-structured interviews was conducted. Six experts on self-management and medical...
15 CitationsSource
#1Hannah M. L. Young (University Hospitals of Leicester NHS Trust)H-Index: 7
#2Lindsay Apps (University Hospitals of Leicester NHS Trust)H-Index: 8
Last. Sally Singh (University Hospitals of Leicester NHS Trust)H-Index: 45
view all 6 authors...
Author contributions HMLY carried out the data analysis and data interpretation. SLH and LDA carried out the data analysis and assisted with data interpretation. VLJW conducted the data collection. NH and SJS designed the study and assisted with data interpretation. SJS conceived of the study. All authors assisted in drafting, revising and approving the final manuscript. All authors accept accountability for all aspects of the final manuscript. Disclosure The authors report no conflicts of inter...
15 CitationsSource
#2Synneve Dahlin-Ivanoff (University of Gothenburg)H-Index: 22
Last. Kajsa Eklund (University of Gothenburg)H-Index: 14
view all 4 authors...
Background: Older persons’ right to exercise self-determination in daily life is supported by several laws. Research shows that older persons’ self-determination is not fully respected within the healthcare sector. In order to enable and enhance older persons’ self-determination, extensive knowledge of older persons’ self-determination is needed. The aim of this study was to explore experiences of self-determination when developing dependence in daily activities among community-dwelling persons ...
11 CitationsSource
#1L. Claassens (VU: VU University Amsterdam)H-Index: 2
#2Guy Widdershoven (VU: VU University Amsterdam)H-Index: 34
Last. Martijn Huisman (VU: VU University Amsterdam)H-Index: 34
view all 7 authors...
Frail older adults are increasingly encouraged to be in control of their health care, in Western societies. However, little is known about how they themselves perceive control in health care. Therefore, this study aims to investigate the concept of health care-related perceived control from the viewpoint of frail older adults. A qualitative interview study was conducted following a Grounded Theory approach. Thirty-two Dutch frail older adults, aged 65 and over, participated in 20 in-depth interv...
16 CitationsSource
#1Catharina Lindberg (BTH: Blekinge Institute of Technology)H-Index: 3
#2Cecilia Fagerström (BTH: Blekinge Institute of Technology)H-Index: 14
Last. Ania Willman (BTH: Blekinge Institute of Technology)H-Index: 19
view all 4 authors...
Aim. This paper is a report of an analysis of the concept of patient autonomy. Background. Many problems regarding patient autonomy in healthcare contexts derive from the patient's dependent c ...
17 CitationsSource
Cited By3
Newest
#1Riitta Turjamaa (Savonia University of Applied Sciences)
view all 3 authors...
Memory disorders have become a major public, social, and health concern among the aging population, and many of those who are affected are cared for at home by their spouse. The aim of this qualitative study was to describe the individual experiences of 10 older caregivers who were looking after a spouse with a memory disorder in 2016. Data were collected from volunteers who were recruited from a memory clinic at a Finnish health center using the thematic interview method and processed using ind...
Source
#1Rn Riitta Turjamaa MSc (University of Eastern Finland)H-Index: 3
#2Aki Pehkonen (University of Eastern Finland)
Last. Mari Kangasniemi (UTU: University of Turku)H-Index: 12
view all 3 authors...
Source
Autonomy is important in every stage of life. However, little is known about how autonomy is enhanced for older adults living in residential care facilities (RCFs). This leads to the research question: which facilitators and barriers to autonomy of older adults with physical impairments due to ageing and chronic health conditions living in RCFs are known? The results will be organised according to the framework of person-centred practice, because this is related to autonomy enhancement. To answe...
Source
#1Kitty Suddick (RMIT: RMIT University)H-Index: 5
#2Vinette Cross (RMIT: RMIT University)H-Index: 2
Last. Kathleen Galvin (RMIT: RMIT University)H-Index: 21
view all 5 authors...
Abstract This hermeneutic phenomenological study was undertaken in response to the recent re-organization of stroke unit provision in the United Kingdom. Through the analysis of four acute stroke unit practitioners' subjective accounts, the acute stroke unit emerged as a dynamic, meaningful space, where they experienced authenticity and belonging. The findings showed how these practitioners navigated their way through the space, thriving, and/or surviving its' associated vulnerabilities. They of...
Source