An overview of the Cure SMA membership database: Highlights of key demographic and clinical characteristics of SMA members

The Cure SMA database is one of the largest patient reported databases for people affected with SMA.The purpose of this study was to examine a subset of affected SMA persons with types I, II, and III from a patient reported database.Individuals with SMA were selected from the database using a date of first contact to Cure SMA between 2010 and 2016. Data analyzed included age at diagnosis, number of weeks from SMA diagnosis to contacting Cure...