Initial development and validation of a fecal incontinence-specific quality of life measure

Background/Purpose Fecal incontinence is a prevalent pediatric condition with psychosocial impacts on both children and their caregivers. We sought to develop and validate the Cincinnati Fecal Incontinence Scale (CINCY-FIS) as a psychometrically valid measure to assess the quality of life and caregiver impacts of pediatric fecal incontinence. Methods Items were generated through review of previous measures, expert consensus, and pilot testing...