Review paper
An overview of the impact of rare disease characteristics on research methodology
Abstract
About 30 million individuals in the United States are living with a rare disease, which by definition have a prevalence of 200,000 or fewer cases in the United States ([National Organization for Rare Disorders], [About NORD], [2016]). Disease heterogeneity and geographic dispersion add to the difficulty of completing robust studies in small populations. Improving the ability to conduct research on rare diseases would have a significant impact on...
Paper Details
Title
An overview of the impact of rare disease characteristics on research methodology
Published Date
Jan 19, 2018
Volume
13
Issue
1
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