Participants’ decision to enroll in cohort studies with biobanks: quantitative insights from two German studies

Aim: To understand participants’ actual motivations to enroll in cohort studies with biobanks. Methods: Participants of two such studies currently ongoing in Germany were invited to fill in a questionnaire about their decision to enroll. Results: From the 623 questionnaires completed, contributing to scientific knowledge appeared as a main motive for enrollment, followed by learning about personal health status and receiving personal medical...