SP0138 The challenges of patient involvement in scientific research. how to achieve true representation of the patients' voice?

There is a strong call in the western world for collaborative research. Rheumatology is one of the disciplines that has explored best practices and paved the way to implement lessons learned. Although good methodologies for evaluating the impact of patient participation stay behind, we have been able to develop expert-based recommendations for collaboration. They are helpful for both researchers and patient representatives, but they do not...