Family Functioning in the Context of Pediatric Chronic Conditions

Published on Jan 1, 2010in Journal of Developmental and Behavioral Pediatrics2.26
· DOI :10.1097/DBP.0b013e3181c7226b
Michele Herzer13
Estimated H-index: 13
(Cincinnati Children's Hospital Medical Center),
Neha Godiwala1
Estimated H-index: 1
+ 6 AuthorsAvani C. Modi35
Estimated H-index: 35
Objective—The aims were to describe and compare generic family functioning in children with five different chronic conditions and healthy comparisons, and to examine the relations between family functioning and sociodemographic variables. Methods—A secondary data analysis from six independent studies including 301 children (Cystic Fibrosis: n=59; Obesity: n=28; Sickle Cell Disease: n=44; Inflammatory Bowel Disease: n=43; Epilepsy: n=70; Healthy Comparison Group: n=57) was conducted. In each study, parents completed the Family Assessment Device (FAD). Results—Across all five chronic conditions, between 13% and 36% of families endorsed levels of functioning in the “unhealthy” range, with the greatest proportions in the following domains: Communication, Roles, and Affective Involvement. No significant group (i.e., between all 6 groups, namely 5 chronic conditions as well as healthy comparisons) differences were observed on FAD scales (model F (35, 1335) = 0.81, p = .79). Older child age, fewer children living in the home, and lower household income were significantly related to poorer family functioning in as the areas of Communication, Roles, Affective Involvement, and General Functioning. Conclusions—Families of children with and without chronic conditions do not differ significantly from each other on generic family functioning. However, risk factors for poor family functioning include older child age, less children in the home, and lower household income. These risk factors combined with data suggesting that a subset of families exhibit “unhealthy functioning” warrants the need for close monitoring of how families function in the context of a pediatric condition.
  • References (49)
  • Citations (88)
Published on Oct 1, 2008in Journal of Pediatric Psychology2.67
Melissa A. Alderfer30
Estimated H-index: 30
(UPenn: University of Pennsylvania),
Barbara H. Fiese1
Estimated H-index: 1
(UPenn: University of Pennsylvania)
+ 7 AuthorsJoan M. Patterson37
Estimated H-index: 37
(UMN: University of Minnesota)
Objective To provide a review of the evidence base of family measures relevant to pediatric psychology. Method Twenty-nine family measures were selected based upon endorsement by Division 54 listserv members, expert judgment, and literature review. Spanning observational and self-report methods, the measures fell into three broad assessment categories: Family functioning, Dyadic family relationships, and Family functioning in the context of childhood chronic health conditions. Measures were cate...
Published on Jun 18, 2008in Journal of Pediatric Psychology2.67
Lindsey L. Cohen32
Estimated H-index: 32
(UPenn: University of Pennsylvania),
Annette M. La Greca2
Estimated H-index: 2
(UPenn: University of Pennsylvania)
+ 3 AuthorsKathleen Lemanek3
Estimated H-index: 3
(UPenn: University of Pennsylvania)
In the past decade, there has been considerable attention devoted to evaluating the scientific merit of psychological treatments. In 1995, Division 12 (Clinical Psychology) of the American Psychological Association (APA) embarked on an evaluation of evidence-based (formerly referred to as empirically supported) treatments for psychopathology (Task Force on Promotion and Dissemination of Psychological Procedures, 1995). A similar venture soon followed from Division 53 (Society of Child Clinical a...
Published on Mar 1, 2008in Behavior Therapy3.24
Tim Wysocki38
Estimated H-index: 38
(Nemours Foundation),
Michael A. Harris22
Estimated H-index: 22
(WashU: Washington University in St. Louis)
+ 5 AuthorsNeil H. White50
Estimated H-index: 50
(St. Louis Children's Hospital)
We report a randomized trial of a revised Behavioral Family Systems Therapy for Diabetes (BFST-D) intervention. Families of 104 adolescents with diabetes were randomized to standard care (SC) or to 6 months of an educational support group (ES) or BFST-D. Family communication and problem-solving skills were assessed at 0, 6, 12, and 18 months by independent rating of videotaped family problem-solving discussions. BFST-D improved individual communication of adolescents and mothers, but not fathers...
Published on Feb 23, 2008in Journal of Pediatric Psychology2.67
Danny C. Duke16
Estimated H-index: 16
(Cincinnati Children's Hospital Medical Center),
Gary R. Geffken46
Estimated H-index: 46
(Cincinnati Children's Hospital Medical Center)
+ 3 AuthorsJanet H. Silverstein47
Estimated H-index: 47
(Cincinnati Children's Hospital Medical Center)
Objective This study examined predictive and mediated relationships among youth perception of critical parenting, Child Behavior Checklist Externalizing Subscale (CBCL) externalizing problem scores, adherence, and (hemoglobin A1c HbA1c), in youth with type 1 diabetes from low socioeconomic status families. Methods Caregiver/youth dyads (n ¼120) completed diabetes specific measures of family functioning regarding diabetes management and structured adherence interviews. Parents completed the CBCL,...
Published on Jan 1, 2008in Journal of Family Psychology2.35
Katholiki Georgiades25
Estimated H-index: 25
(McMaster University),
Michael H. Boyle78
Estimated H-index: 78
(McMaster University)
+ 2 AuthorsEllen L. Lipman21
Estimated H-index: 21
(McMaster University)
This study demonstrates the use of multilevel modeling to examine influences on ratings of whole family functioning collected from multiple family members (N = 26,614) living in 11,023 families with 1 or more dependent children aged 0 to 24 years. Results indicate that 45.7% of the variance in ratings of whole family functioning was shared among family members, whereas 54.3% was nonshared. Family-level characteristics, such as socioeconomic status (SES), family structure and composition, and fam...
Published on Oct 18, 2007in Journal of Pediatric Psychology2.67
Ronald T. Brown59
Estimated H-index: 59
(UCLA: University of California, Los Angeles),
Lori Wiener33
Estimated H-index: 33
(UCLA: University of California, Los Angeles)
+ 17 AuthorsErnest R. Katz13
Estimated H-index: 13
(UCLA: University of California, Los Angeles)
We have attempted to underscore the critical need to conduct long needed research among children with chronic illnesses within the context of the changing family demography in this country. Research should encompass the various types of families that exist in our society, including those families that are headed by single parents. It clearly is not possible within the space limitations to delineate all research possibilities. Rather, our plan was to identify some of the more significant gaps in ...
Published on Jul 1, 2007in Diabetes Care15.27
Korey K. Hood29
Estimated H-index: 29
Deborah A. Butler15
Estimated H-index: 15
+ 1 AuthorsLori Laffel60
Estimated H-index: 60
OBJECTIVE — The purpose of this study was to update the Diabetes Family Conflict Scale (DFCS) in the era of intensive diabetes management and provide an indication of its psychometric properties. RESEARCH DESIGN AND METHODS — The revised DFCS and measures of negative emotions around blood glucose monitoring (BGM), quality of life, and perceived parental burden from diabetes management were completed by 202 children and adolescents with type 1 diabetes and their primary caregivers. Insulin regime...
Published on May 1, 2007in Clinical Pediatrics1.38
Monica J. Mitchell18
Estimated H-index: 18
(Cincinnati Children's Hospital Medical Center),
Kathleen L. Lemanek17
Estimated H-index: 17
(Nationwide Children's Hospital)
+ 3 AuthorsScott W. Powers44
Estimated H-index: 44
(Cincinnati Children's Hospital Medical Center)
Pediatric sickle cell disease is a chronic illness for which recurrent pain is a ubiquitous experience. This study used quantitative and qualitative methods to examine relationships between patient and family coping and health care utilization in children with sickle cell disease and to assess parents' recommendations for ensuring patient and family-centered care. Participants were 53 parents of children aged 7 to 13 with sickle cell disease across three large urban children's hospitals. Data sh...
Published on Mar 1, 2007in The Journal of Pediatrics3.74
Catherine B. McClellan11
Estimated H-index: 11
(USC: University of South Carolina),
Lindsey L. Cohen32
Estimated H-index: 32
(GSU: Georgia State University)
dvances in medical care and technology have increased the lifespan and decreased the disease-related suffering of children with chronic illnesses. In addition to physical health outcomes, health care professionals are increasingly evaluating other parameters, such as child and family adjustment. Among these psychosocial factors, family functioning s a key variable that has been shown to play an essential role in children’s adjustment to chronic illness. Family functioning is a broad concept and ...
Published on Jan 1, 2007in Annual Review of Psychology19.75
Rand D. Conger93
Estimated H-index: 93
(UC Davis: University of California, Davis),
M. Brent Donnellan46
Estimated H-index: 46
(MSU: Michigan State University)
This article addresses the relationship between socioeconomic status (SES), family processes, and human development. The topic is framed as part of the general issue of health disparities, which involves the oft-observed positive relationship between SES and the cognitive, social, emotional, and physical well-being of adults and children. A review of recent research and theory identifies three general theoretical approaches that provide possible explanations for the association between SES and i...
Cited By88
Published on Aug 25, 2019in Children's Health Care0.52
Emily M. Steiner (UMBC: University of Maryland, Baltimore County), Lynnda M. Dahlquist (WSU: Washington State University)+ 1 AuthorsMary E. Bollinger20
Estimated H-index: 20
(UMB: University of Maryland, Baltimore)
Published on Aug 24, 2019in Journal of Health Psychology2.26
Stephanie O’Toole ('QUB': Queen's University Belfast), Pamela Gallagher21
Estimated H-index: 21
(DCU: Dublin City University)
+ 3 AuthorsVeronica Lambert13
Estimated H-index: 13
(DCU: Dublin City University)
This study examined the relationship between parent–child communication and psychosocial well-being of 47 children living with epilepsy and 72 parents of children living with epilepsy. Open communi...
Published on Aug 21, 2019in Interactive Cardiovascular and Thoracic Surgery1.93
Jo Wray27
Estimated H-index: 27
(Great Ormond Street Hospital for Children NHS Foundation Trust),
Matthew Ryde (Great Ormond Street Hospital for Children NHS Foundation Trust)+ 1 AuthorsRichard Hewitt Frcs11
Estimated H-index: 11
(Great Ormond Street Hospital for Children NHS Foundation Trust)
Published on Jul 1, 2019in Journal of Pediatric Nursing
Kim Mauriën (University of Antwerp), Elke Van de Casteele5
Estimated H-index: 5
(University of Antwerp),
Nasser Nadjmi10
Estimated H-index: 10
(University of Antwerp)
Abstract Purpose Cleft is one of the most common anomalies affecting 1 in every 500–750 newborns. Depending on the type of cleft and its size, these children may experience feeding problems immediately after birth. Cleft has consequences for the child, as well as for the parents. The aim of this study was to gain a better understanding on the factors influencing the psychological well-being of the parents. Also, the experiences of parents of children with feeding problems and the received medica...
Published on Mar 1, 2019in Pediatric Transplantation1.33
Meghan Marie Kraenbring (La Salle University), Nataliya Zelikovsky15
Estimated H-index: 15
(La Salle University)
+ 0 AuthorsKevin Meyers (Children's Hospital of Philadelphia)
Published on Jan 11, 2019in Paediatrics and Child Health1.06
Arpita Parmar1
Estimated H-index: 1
(U of T: University of Toronto),
Eluen Ann Yeh (U of T: University of Toronto)+ 6 AuthorsIndra Narang20
Estimated H-index: 20
(U of T: University of Toronto)
Published on Jan 1, 2019in Journal of Pediatric Psychology2.67
Alexandra M. Psihogios2
Estimated H-index: 2
(Children's Hospital of Philadelphia),
Heather Fellmeth1
Estimated H-index: 1
(La Salle University)
+ 1 AuthorsLamia P. Barakat29
Estimated H-index: 29
(UPenn: University of Pennsylvania)
Published on Jan 1, 2019in Journal of Pediatric Nursing
Shokoufeh Modanloo (Children's Hospital of Eastern Ontario), Camelia Rohani4
Estimated H-index: 4
(Shahid Beheshti University of Medical Sciences and Health Services)
+ 2 AuthorsAsma Pourhosseingholi (Shahid Beheshti University of Medical Sciences and Health Services)
Abstract Purpose The diagnosis of cancer in a child brings about a crisis for the whole family. This study aimed to (1) determine family functioning and parents' quality of life in comparison with groups in relevant studies, (2) assess the correlation between dimensions of family functioning and parents' quality of life domains, and (3) explore the predictive role of general family functioning (GFF) for quality of life domains in a sample of families (mother-father as a dyad) of children with ca...
Published on Dec 1, 2018in Journal of Child and Family Studies1.56
Hadas Doron3
Estimated H-index: 3
(Tel-Hai Academic College),
Meirav Hen6
Estimated H-index: 6
(Tel-Hai Academic College),
Adi Sharabi-Nov5
Estimated H-index: 5
(Tel-Hai Academic College)
The present study examined the quality of parent–child relationships as reported by 383 parents of chronically ill children. The medical condition category, child’s mobility, education type and childcare assistance were examined. Parents answered the Parent–Child Relationship Inventory (PCRI). In addition, 45 parents of chronically ill children were interviewed. The results indicated a significant difference in most aspects of the PCRI (limit setting, promotion of autonomy, communication, satisf...
View next paperFamily Functioning in Children with Chronic Illness Compared with Healthy Controls : A Critical Review