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Patients’ experience of a regional allergy service

Published on Sep 2, 2013in Journal of Public Health Research
· DOI :10.4081/jphr.2013.e13
Ray Jones32
Estimated H-index: 32
(PSU: Plymouth State University),
L. A. O’Connor6
Estimated H-index: 6
(PSU: Plymouth State University),
E Kaminski2
Estimated H-index: 2
(PSU: Plymouth State University)
Cite
Abstract
Background . The principle reason for referral to specialist allergy clinics is to establish diagnoses and provide treatment plans to help patients manage their allergy. If patients do not accept, understand, or remember diagnoses or treatment, clinic visits may have been a waste of time. Few specialist allergy clinics follow up patients after diagnosis. Design and Methods . This was a postal survey to assess patients’ i) perception of usefulness of specialist allergy clinic visits, ii) under- standing of their allergy, iii) confidence in managing it, and iv) response to joining a regional online forum. Data for patients with confirmed allergy who attended the Peninsula Allergy Service (PAS) from 1998-2009 were extracted from consultant letters to general practitioners. Postal questionnaires were sent to 933 patients; 39% (336) responded. Results . Two-thirds (63%) thought their clinic visit useful and resulted in them being more in control of their allergy; 9% thought it useful but they still had problems, 26% thought it had not been much use. One in six (16%, 55) respondents had major differences in their view of their allergy compared to that recorded by PAS. Over half (56%) had had further symptoms since their clinic visit and 120 patients, who were not confident in coping with their allergy, listed aspects of their lives that gave concern. Conclusions . Specialist clinics need routine feedback from patients if they are to monitor their effectiveness and some better form of follow up for patients is needed to reinforce education and support patients. Public education is important.
  • References (9)
  • Citations (2)
Cite
References9
Newest
Jay A. Lieberman13
Estimated H-index: 13
(ISMMS: Icahn School of Medicine at Mount Sinai),
Scott H. Sicherer78
Estimated H-index: 78
(ISMMS: Icahn School of Medicine at Mount Sinai)
Purpose of review The purpose of this review is to provide a review of studies examining health-related quality of life (HRQL) in food-allergic individuals, with an emphasis on publications since 2007. Recent findings Over the past few years, an increasing number of studies have addressed the impact that food allergy has on HRQL. Many studies have used generic quality-of-life instruments to compare HRQL between food-allergic patients and healthy controls or between food-allergic patients and per...
Published on Mar 1, 2011in The Journal of Allergy and Clinical Immunology
Scott H. Sicherer78
Estimated H-index: 78
(ISMMS: Icahn School of Medicine at Mount Sinai)
Adverse reactions to foods can occur for a variety of reasons, but a food allergy is caused by a specific immune response. Challenges to determine the prevalence of food allergy include misclassification, biased participation, lack of simple diagnostic tests, rapid evolution of disease, large numbers of potential triggers, and varied clinical phenotypes. Nonetheless, it is clear that this is a common disorder, with studies suggesting a cumulative prevalence of 3% to 6%, representing a significan...
Published on Dec 1, 2010in BMC Public Health 2.57
Ray Jones32
Estimated H-index: 32
(Plymouth University),
Paul Hewson14
Estimated H-index: 14
(Plymouth University),
Edward R. Kaminski22
Estimated H-index: 22
(Derriford Hospital)
Background Allergy is a serious and apparently increasing public health problem yet relatively little is known about the types of allergy seen in routine tertiary practice, including their spatial distribution, co-occurrence or referral patterns. This study reviewed referrals over an eleven year period to a regional allergy clinic that had a well defined geographical boundary. For those patients confirmed as having an allergy we explored: (i) differences over time and by demographics, (ii) types...
Heather MacKenzie4
Estimated H-index: 4
(RMIT: RMIT University),
Taraneh Dean32
Estimated H-index: 32
(RMIT: RMIT University)
Given that food is essential for life and that there is currently no cure for food hypersensitivity (FHS), quality of life is a key outcome measure for those affected. The quality of life of children and teenagers with FHS is particularly important given that they must learn to manage their FHS while also contending with normal developmental challenges. This article will review the current state of quality of life research in this important area, and discusses the impact of FHS on the quality-of...
Published on Feb 22, 2010in Allergy 6.77
Amanda Cummings8
Estimated H-index: 8
(University of Southampton),
Rebecca C. Knibb17
Estimated H-index: 17
(University of Derby)
+ 1 AuthorsJane S. Lucas32
Estimated H-index: 32
(University of Southampton)
Food allergy affects 6% of children but there is no cure, and strict avoidance of index allergens along with immediate access to rescue medication is the current best management. With specialist care, morbidity from food allergy in children is generally low, and mortality is very rare. However, there is strong evidence that food allergy and food hypersensitivity has an impact on psychological distress and on the quality of life (QoL) of children and adolescents, as well as their families. Until ...
Published on Dec 1, 2009in The Journal of Allergy and Clinical Immunology
Jennifer S. LeBovidge15
Estimated H-index: 15
(Boston Children's Hospital),
Heather Strauch2
Estimated H-index: 2
(Boston Children's Hospital)
+ 1 AuthorsLynda C. Schneider45
Estimated H-index: 45
(Boston Children's Hospital)
Background Youth with food allergy may experience psychosocial stressors including limitations in activities, differences from peers, and anxiety. Factors such as allergy-related medical history, children's attitudes toward their allergies, and parental anxiety may function as risk and resilience factors associated with psychological distress in this population. Objective To assess mean scores and rates of elevated scores on standardized measures of psychological distress among youth with food a...
Published on Aug 21, 2009in Pediatric Allergy and Immunology 4.65
Heather MacKenzie4
Estimated H-index: 4
(RMIT: RMIT University),
Graham J. Roberts G J62
Estimated H-index: 62
(University of Southampton)
+ 1 AuthorsTaraneh Dean32
Estimated H-index: 32
(RMIT: RMIT University)
Teenagers are a high-risk group for food-hypersensitivity fatalities, engage in risk-taking behaviours and may experience impaired quality of life. Understanding their experience is important to inform their care. This study aimed to describe the lived experiences of teenagers with food hypersensitivity. Individual semi-structured interviews were conducted with 21 teenagers (13-18 yr) with food hypersensitivity to a variety of foods and analysed using a phenomenological approach. Teenagers descr...
Published on Mar 1, 2009in Allergy 6.77
R.M. King10
Estimated H-index: 10
(University of Southampton),
Rebecca C. Knibb17
Estimated H-index: 17
(University of Derby),
Jonathan O'b. Hourihane47
Estimated H-index: 47
(UCC: University College Cork)
Background: Peanut allergy (PA) is known to impact on quality of life (QoL) of the sufferer, but little research has focused on all family members. We therefore sought to establish the impact of PA on QoL and reported anxiety of children with clinically confirmed PA, their parents and older siblings. Methods: Forty-six families, who had a child with PA, completed QoL (PedsQLTM or WHOQOL-BREF), anxiety (SCAS or STAI) and perceived stress (PSS) scales. PA children completed a PA specific QoL quest...
Published on Oct 1, 1997in Allergy 6.77
Elizabeth F. Juniper66
Estimated H-index: 66
Many clinicians now recognize the importance of incorporating an assessment of health-related quality of life (HRQL) into their clinical studies and practice. Conventional clinical measures provide valuable information about the status of the affected organ system, but they rarely capture the functional impairments (physical, emotional, and social) that are important to the patients in their everyday lives. In order to obtain a complete picture of a patient's health status, both the conventional...
Cited By2
Newest
Published on Feb 1, 2017in BMJ Open 2.38
Lavanya Diwakar9
Estimated H-index: 9
(University of Birmingham),
Carole Cummins15
Estimated H-index: 15
(University of Birmingham)
+ 1 AuthorsTracy Roberts26
Estimated H-index: 26
(University of Birmingham)
Objectives The incidence and prevalence of allergies worldwide has been increasing and allergy services globally are unable to keep up with this increase in demand. This systematic review aims to understand the delivery of allergy services worldwide, challenges faced and future directions for service delivery. Methods A systematic scoping review of Ovid, EMBASE, HMIC, CINAHL, Cochrane, DARE, NHS EED and INAHTA databases was carried out using predefined inclusion and exclusion criteria. Data on t...
Published on Jul 1, 2014in Journal of Public Health Research
Ray Jones32
Estimated H-index: 32
(PSU: Plymouth State University),
Emily J Ashurst6
Estimated H-index: 6
(PSU: Plymouth State University)
+ 2 AuthorsEdward R. Kaminski22
Estimated H-index: 22
(Derriford Hospital)
Many patients with suspected allergy are referred to specialist care inappropriately. We aimed to develop and implement an online decision pathway to aid General Practitioners’ (GPs) management decisions in suspected allergy. Our study involved 1487 GPs, 3 referral management centres, 5 GP system suppliers, 4 primary care trusts, and 1 specialist allergy clinic. The pathway was implemented by 3/5 GP system suppliers, published to Map of Medicine and on a specialist clinic website. In the first y...