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Working patterns and perceived contribution of prostate cancer clinical nurse specialists: A mixed method investigation

Published on Oct 1, 2009in International Journal of Nursing Studies3.57
· DOI :10.1016/j.ijnurstu.2009.03.006
Emma Ream30
Estimated H-index: 30
('KCL': King's College London),
Jenifer Wilson-Barnett28
Estimated H-index: 28
('KCL': King's College London)
+ 3 AuthorsAlison Richardson45
Estimated H-index: 45
('KCL': King's College London)
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Abstract
Abstract Background Prostate cancer is prevalent worldwide. In England, men living with this malignancy often report unmet psychological, informational, urological and sexual needs. Their experience of care is correspondingly lower than that of other patient groups with cancer. To address this, prostate cancer clinical nurse specialist posts were established across England and Scotland. Their intent was to support men with this form of cancer, enhance symptom management and improve quality of service provision. Objectives The research sought to investigate prostate cancer clinical nurse specialists' roles, determine whom they targeted services at, and determine their work practices and perceived contribution. Design A mixed method multi-site exploratory-descriptive design was employed. Settings Data were collected across four acute NHS Trusts—one in the South of England, one in the Midlands, one in Northern England and one in Scotland, respectively. Participants Participants included 4 prostate cancer clinical nurse specialists, 19 of their clinical colleagues and 40 men they provided care to. Methods Data were collected through nurse specialists' completion of a Diary and Contact Sheets. Interviews were conducted concurrently with the nurses, stakeholders they worked alongside and patients on their caseload. Data were collected between November 2004 and January 2006. Results There was great variation in the qualifications and experience of nurse specialists and in the services they provided. Services ranged from generic support and information provided across the disease trajectory to provision of services to meet specific care needs, e.g. providing nurse-led clinics for erectile dysfunction. Patients and members of the multidisciplinary team welcomed the introduction of nurse specialists but were aware they could become over burdened through their rapidly growing caseloads. Conclusions Variability in services provided by the prostate cancer nurse specialists arose from differences in local demand for nursing services and the skills and experiences of those appointed. Such variability – whilst understandable – has implications for access and equity across patient groups. Further, it can compromise efforts to define clinical nurse specialists' contribution to care, can impede others' expectation of their role, and render their outcomes difficult to evaluate.
  • References (29)
  • Citations (32)
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References29
Newest
Published on Dec 20, 2013
Jane Ritchie4
Estimated H-index: 4
(University of Giessen),
Jane Lewis6
Estimated H-index: 6
+ 1 AuthorsRachel Ormston1
Estimated H-index: 1
The Foundations of Qualitative Research - Rachel Ormston, Liz Spencer, Matt Barnard, Dawn Snape The Applications of Qualitative Methods to Social Research - Jane Ritchie and Rachel Ormston Design Issues - Jane Lewis and Carol McNaughton Nicholls Ethics of Qualitative Research - Stephen Webster, Jane Lewis and Ashley Brown Designing and Selecting Samples - Jane Ritchie, Jane Lewis, Gilliam Elam, Rosalind Tennant and Nilufer Rahim Designing Fieldwork - Sue Arthur, Martin Mitchell, Jane Lewis and C...
Published on Dec 1, 2008in BMC Health Services Research1.93
Carolyn Tarrant19
Estimated H-index: 19
(University of Leicester),
Paul Sinfield9
Estimated H-index: 9
(University of Leicester)
+ 1 AuthorsRichard Baker56
Estimated H-index: 56
(University of Leicester)
Background Specialist nurses may play an important role in helping to improve the experiences of patients with prostate cancer, however there is concern that the specialist nurse role is under threat in the UK due to financial pressures in the NHS. This study explored the role and value of specialist nurses in prostate cancer care via a survey and patient interviews.
Published on Jun 1, 2008in British Journal of Cancer5.42
Emma Ream30
Estimated H-index: 30
,
A Quennell2
Estimated H-index: 2
+ 4 AuthorsA. Richardson4
Estimated H-index: 4
Men with prostate cancer have various treatment options depending upon their stage of disease, age and presence of comorbidity. However, these treatments typically induce side effects, which generate currently ill-defined supportive care needs. This study examined the supportive care needs of men with prostate cancer within England. A postal questionnaire survey was conducted in six acute NHS Trusts. Seven hundred and forty-one men with prostate cancer participated. They had been diagnosed 3–24 ...
Published on Apr 1, 2008in Cancer Nursing Practice
Paul Trevatt4
Estimated H-index: 4
,
Jason Petit1
Estimated H-index: 1
,
Alison Leary7
Estimated H-index: 7
Published on Jun 20, 2007in Journal of Clinical Oncology28.25
David P. Smith15
Estimated H-index: 15
,
Rajah Supramaniam12
Estimated H-index: 12
+ 3 AuthorsBen Armstrong100
Estimated H-index: 100
Purpose It is important to meet the supportive care needs of cancer patients to ensure their satisfaction with their care. A population-wide sample of men younger than 70 years and newly diagnosed with prostate cancer was surveyed to determine their unmet needs in five domains and the factors predicting them. Patients and Methods Eligible men were younger than 70 years and residents in New South Wales, Australia, with newly diagnosed histopathologically confirmed prostate cancer. Sixty-seven per...
Published on Mar 1, 2007in BJUI4.52
Heather Payne17
Estimated H-index: 17
(UCLH: University College Hospital),
David A. Gillatt1
Estimated H-index: 1
(UCLH: University College Hospital)
OBJECTIVE To determine the management practices used by UK oncologists and urologists for patients with locally advanced (non-metastatic) prostate cancer. METHODS Using a postal questionnaire, 155 practising specialist oncologists and urologists were surveyed in the UK. Their views were sought on a multidisciplinary approach to the management of locally advanced prostate cancer and their current management practices. RESULTS Over half of respondents recognized the need for both oncologists and u...
Published on Jan 26, 2007
Jerry Willis3
Estimated H-index: 3
Chapter 1: World Views, Paradigms, and the Practice of Social Science Research Case 1. Quantitative Research Case 2. Qualitative Research Thinking about the Foundations and Practice of Research What This Book Is and Is Not About. What Warrants Our Attention? The Traditional Canon Alternative Paradigms New Techniques or New Paradigms? Chapter 2: History and Context of Paradigm Development Positivism: A Response to Metaphysical and Magical Explanations Critical Theory: A Response to Inequities in ...
Published on Aug 18, 2006
John W. Creswell45
Estimated H-index: 45
(NU: University of Nebraska–Lincoln),
Vicki L. Plano Clark22
Estimated H-index: 22
(NU: University of Nebraska–Lincoln)
List of Tables List of Figures Preface Purpose of This Book Audience for the Book Book Features Acknowledgments Chapter 1: Understanding Mixed Methods Research Purpose and Organization Clarifying Terms What Is Mixed Methods Research? The Importance of Mixed Methods Research Summary Activities Additional Resources to Examine Chapter 2: Examining Preliminary Considerations Consider Worldview Stances The Basics of Quantitative and Qualitative Research Research Problems Addressed by Mixed Methods Su...
Published on Nov 1, 2004in Nurse Education Today2.44
Megan Rosser2
Estimated H-index: 2
(Swansea University),
Ann Marie Rice8
Estimated H-index: 8
(Glas.: University of Glasgow)
+ 1 AuthorsCatherine Jack1
Estimated H-index: 1
(University of Leeds)
Summary Health care professionals moving from general care to specialist cancer and palliative care face many challenges during their role transition. Mentorship has been identified as an effective support mechanism during role transition and the Macmillan National Institute of Education devised and piloted a mentorship training programme to enable established specialist practitioners to support new practitioners through their transition into specialist practice. The 12-month programme consisted...
Cited By32
Newest
Published on Jul 9, 2019in Journal of Clinical Nursing1.76
Owen Doody13
Estimated H-index: 13
(UL: University of Limerick),
Eamonn Slevin13
Estimated H-index: 13
,
Laurence Taggart18
Estimated H-index: 18
(Ulster University)
Published on Oct 1, 2018in European Urology Oncology
Netty Kinsella2
Estimated H-index: 2
(UniSA: University of South Australia),
Kerri Beckmann15
Estimated H-index: 15
(UniSA: University of South Australia)
+ 6 AuthorsMieke Van Hemelrijck24
Estimated H-index: 24
(UniSA: University of South Australia)
Abstract Background Researchers remain divided on the major causes of dropout from active surveillance (AS), with rates of up to 38% among men with no evidence of prostate cancer (PC) progression. Objective To develop and evaluate an educational intervention in terms of adherence to AS among men with low- to intermediate-risk PC. Design, setting, and participants We first carried out focus group discussions with men who had remained on and dropped out of AS to inform an intervention to increase ...
Published on Feb 1, 2018in British journal of nursing
Vanessa Basketter (University Hospital Southampton NHS Foundation Trust), Miranda Benney + 5 AuthorsLisa White (Leeds Teaching Hospitals NHS Trust)
Several treatment options are now available to men with metastatic castration-resistant prostate cancer (mCRPC). While survival rates for mCRPC continue to improve, patients are faced with increasingly complex treatment pathways and decisions. The clinical nurse specialist (CNS) plays a crucial role in navigating patients with mCRPC through their treatment pathway and fulfils a number of key responsibilities, including providing holistic care and support to patients and their families, educating...
Olivia Cook2
Estimated H-index: 2
,
Meredith McIntyre11
Estimated H-index: 11
+ 1 AuthorsSusan Lee9
Estimated H-index: 9
EXECUTIVE SUMMARYBackgroundThe care needs of women with gynecological cancer are complex and change over the course of their cancer journey. Specialist nurses are well positioned to play a role in meeting the needs of women with gynecological cancer although their role and scope of practice have not
Published on Jan 1, 2017in Journal of Advanced Nursing2.38
Alyson L Huntley12
Estimated H-index: 12
(UoB: University of Bristol),
Anna J L King2
Estimated H-index: 2
(UoB: University of Bristol)
+ 4 AuthorsMaggie Evans15
Estimated H-index: 15
(UoB: University of Bristol)
Aims To present a methodological exemplar of integrating findings from a quantitative and qualitative review on the same topic to provide insight into components of care that contribute to supportive care that is acceptable to men with prostate cancer. Background Men with prostate cancer are likely to live a long time with the disease, experience side effects from treatment and therefore have ongoing supportive care needs. Quantitative and qualitative reviews have been published but the findings...
Catherine Paterson6
Estimated H-index: 6
(Dund.: University of Dundee),
Abduelmenem Alashkham3
Estimated H-index: 3
(Dund.: University of Dundee)
+ 1 AuthorsGhulam Nabi20
Estimated H-index: 20
(Dund.: University of Dundee)
Currently, 250 000 men are affected by prostate cancer in the UK. Clinical guidance is crucial for nurses involved in the care delivery for men with advanced prostate cancer and for their families to maximize their quality and quantity of life. It is essential that nurses understand how prostate cancer is diagnosed, can recognize signs of disease progression, are familiar with disease management, and can educate patients and manage any symptoms appropriately and effectively. Therefore, the aim o...
Alison Leary7
Estimated H-index: 7
(LSBU: London South Bank University),
Jane Brocksom3
Estimated H-index: 3
(St James's University Hospital)
+ 7 AuthorsPhilippa Aslet1
Estimated H-index: 1
Prostate cancer is the most common cancer in men in the UK accounting for 25% of all new cases of cancer. It is predicted to become the most common cancer overall by 2030. A national survey of the specialist nursing workforce caring for men with prostate cancer was completed across the four countries of the UK during June and July 2014. In total 302 specialist nurses completed the survey and data from 285 was used in the analysis. This is the biggest whole population survey of this workforce in ...
Published on Jan 1, 2016in Nature Reviews Urology9.33
Alyson Huntley1
Estimated H-index: 1
Effectiveness of an innovative online psychological intervention and forum was investigated in a three-arm randomized controlled trial. Improvements in several elements of psychological distress were observed in men with prostate cancer who had access to both the intervention and the forum over a 10-week period.