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Using Online Social Media for Recruitment of Human Immunodeficiency Virus-Positive Participants: A Cross-Sectional Survey

Published on May 1, 2014in Journal of Medical Internet Research 4.95
· DOI :10.2196/jmir.3229
Patrick Yuan4
Estimated H-index: 4
,
Michael G Bare1
Estimated H-index: 1
+ 1 AuthorsParya Saberi12
Estimated H-index: 12
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Abstract
Background: There are many challenges in recruiting and engaging participants when conducting research, especially with HIV-positive individuals. Some of these challenges include geographical barriers, insufficient time and financial resources, and perceived HIV-related stigma. Objective: This paper describes the methodology of a recruitment approach that capitalized on existing online social media venues and other Internet resources in an attempt to overcome some of these barriers to research recruitment and retention. Methods: From May through August 2013, a campaign approach using a combination of online social media, non-financial incentives, and Web-based survey software was implemented to advertise, recruit, and retain participants, and collect data for a survey study with a limited budget. Results: Approximately US 5,000 was spent with a research staff designated at 20% of full-time effort, yielding 2034 survey clicks, 1404 of which met the inclusion criteria and initiated the survey, for an average cost of US .56 per survey initiation. A total of 1221 individuals completed the survey, yielding 86.97% retention. Conclusions: These data indicate that online recruitment is a feasible and efficient tool that can be further enhanced by sophisticated online data collection software and the addition of non-financial incentives. [J Med Internet Res 2014;16(5):e117]
  • References (34)
  • Citations (57)
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References34
Newest
Published on Mar 1, 2014in Journal of Advanced Nursing 2.38
L. A. O’Connor6
Estimated H-index: 6
(PSU: Plymouth State University),
Leigh Jackson13
Estimated H-index: 13
(PSU: Plymouth State University)
+ 1 AuthorsHeather Skirton28
Estimated H-index: 28
(PSU: Plymouth State University)
Aim To evaluate the social networking site Twitter™ as a vehicle for recruitment in online health research and to examine how the Twitter community would share information: the focus of our study was the antenatal experience of mothers of advanced maternal age. Background One result of growth in worldwide Internet and mobile phone usage is the increased ability to source health information online and to use social media sites including Facebook and Twitter. Although social media have been used i...
78 Citations Source Cite
Published on Nov 11, 2013in Journal of Medical Internet Research 4.95
Susan Quach10
Estimated H-index: 10
,
Jennifer A. Pereira10
Estimated H-index: 10
+ 5 AuthorsJeffrey C. Kwong24
Estimated H-index: 24
Background: We describe our experiences with identifying and recruiting Ontario parents through the Internet, primarily, as well as other modes, for participation in focus groups about adding the influenza vaccine to school-based immunization programs. Objective: Our objectives were to assess participation rates with and without incentives and software restrictions. We also plan to examine study response patterns of unique and multiple submissions and assess efficiency of each online advertising...
21 Citations Source Cite
Published on Sep 24, 2013in JMIR Research Protocols
Rajani S. Sadasivam12
Estimated H-index: 12
(UMMS: University of Massachusetts Medical School),
Erik M. Volz25
Estimated H-index: 25
+ 2 AuthorsThomas K. Houston37
Estimated H-index: 37
Background: Smoking is the number one preventable cause of death in the United States. Effective Web-assisted tobacco interventions are often underutilized and require new and innovative engagement approaches. Web-based peer-driven chain referrals successfully used outside health care have the potential for increasing the reach of Internet interventions. Objective: The objective of our study was to describe the protocol for the development and testing of proactive Web-based chain-referral tools ...
13 Citations Source Cite
Published on Sep 1, 2013in Aids Patient Care and Stds 3.74
Parya Saberi12
Estimated H-index: 12
,
Patrick Yuan4
Estimated H-index: 4
+ 2 AuthorsMallory O. Johnson38
Estimated H-index: 38
Abstract Antiretroviral nonadherence is a strong determinant of virologic failure and is negatively correlated with survival. HIV-positive African American youth have lower antiretroviral adherence and treatment engagement than other populations. We assessed the feasibility and acceptability of a telehealth (remote videoconferencing) medication counseling intervention as an innovative approach to address these disparities. HIV-positive African American youth (18–29 years old) on antiretrovirals ...
22 Citations Source Cite
Published on Sep 1, 2013in Nurse Researcher
Gemma Sinead Ryan3
Estimated H-index: 3
Aim To review current literature and discuss the potential of online social networking to engage patients and the public and recruit and retain participants in clinical research. Background Online social networking is becoming a large influence on people’s daily lives. Clinical research faces several challenges, with an increasing need to engage with patients and the public and for studies to recruit and retain increasing numbers of participants, particularly in under-served, under-represented a...
24 Citations Source Cite
Published on Mar 19, 2013in Journal of Medical Internet Research 4.95
Sharron Close2
Estimated H-index: 2
,
Arlene Smaldone18
Estimated H-index: 18
+ 2 AuthorsMargaret Grey DrPH Rn Faan46
Estimated H-index: 46
Background: Recruiting pediatric samples for research may be challenging due to parental mistrust of the research process, privacy concerns, and family time constraints. Recruitment of children with chronic and genetic conditions may further complicate the enrollment process. Objective: In this paper, we describe the methodological challenges of recruiting children for research and provide an exemplar of how the use of information technology (IT) strategies with social networking may improve acc...
45 Citations Source Cite
Published on Feb 12, 2013in Journal of Medical Internet Research 4.95
Amy J. Morgan22
Estimated H-index: 22
(University of Melbourne),
Anthony F. Jorm103
Estimated H-index: 103
,
Andrew Mackinnon65
Estimated H-index: 65
Background: Recruiting participants to randomized controlled trials of health interventions can be very difficult. Internet-based recruitment is becoming an increasingly important mode of recruitment, yet there are few detailed accounts of experiences recruiting participants to mental health interventions. Objective: To report on our experience with Internet-based recruitment to an online depression prevention intervention and pass on lessons we learned. Methods: Participants were recruited to t...
77 Citations Source Cite
Published on Nov 1, 2012in Sexually Transmitted Diseases 2.27
Jason W. Mitchell13
Estimated H-index: 13
(UM: University of Michigan),
Andrew E. Petroll10
Estimated H-index: 10
(MCW: Medical College of Wisconsin)
Background Most MSM within the U.S. acquire HIV while in a same-sex relationship. Few studies have examined HIV and STI testing rates among MSM couples. Interestingly, the patterns that MSM test for HIV while in their relationships remain largely unknown. The present study helps fill this gap in knowledge by assessing HIV testing patterns and HIV and STI testing rates from a large convenience sample of Internet-using MSM couples.
38 Citations Source Cite
Published on Oct 1, 2012in Journal of Behavioral Medicine 2.87
Lara Traeger22
Estimated H-index: 22
(Harvard University),
Conall O’Cleirigh30
Estimated H-index: 30
(Fenway Health)
+ 2 AuthorsSteven A. Safren55
Estimated H-index: 55
(Fenway Health)
Benefits of anti-retroviral therapy (ART) depend on consistent HIV care attendance. However, appointment non-adherence (i.e. missed appointments) is common even in programs that reduce financial barriers. Demographic, health/treatment, and psychosocial contributors to appointment non-adherence were examined among men who have sex with men (MSM) attending HIV primary care. Participants (n = 503) completed questionnaires, and HIV biomarker data were extracted from medical records. At 12 months, re...
47 Citations Source Cite
Published on May 1, 2012in Journal of Medical Internet Research 4.95
T.H. van de Belt6
Estimated H-index: 6
,
S.A.A. Berben11
Estimated H-index: 11
+ 2 AuthorsLisette Schoonhoven42
Estimated H-index: 42
Background: Patients increasingly use social media to communicate. Their stories could support quality improvements in participatory health care and could support patient-centered care. Active use of social media by health care institutions could also speed up communication and information provision to patients and their families, thus increasing quality even more. Hospitals seem to be becoming aware of the benefits social media could offer. Data from the United States show that hospitals increa...
42 Citations Source Cite
Cited By57
Newest
Published on May 1, 2019in Frontiers in Psychiatry 3.16
Christine Grove5
Estimated H-index: 5
(Monash University)
The challenges involved in engaging young people who have a parent with a mental illness in research and in programs is well documented. Social networking sites provide a potentially useful medium to include at-risk youth and their families by removing some accessibility barriers that may prevent engagement and connection with individuals who parent or family member have a mental illness. This paper examines how social networking sites can be used to recruit youth and/or their families and engag...
1 Citations Source Cite
Published on Mar 6, 2019in Journal of Medical Internet Research 4.95
Shannon K. Bennetts4
Estimated H-index: 4
,
Stacey Hokke4
Estimated H-index: 4
+ 5 AuthorsAmanda Cooklin17
Estimated H-index: 17
2 Citations Source Cite
Published on Jan 1, 2019in Sexual Health 1.42
Karen Klassen6
Estimated H-index: 6
(Monash University),
Tanya Millard6
Estimated H-index: 6
(Monash University)
+ 9 AuthorsJames H. McMahon18
Estimated H-index: 18
(Monash University)
Background: Recruitment of people to randomised trials of online interventions presents particular challenges and opportunities. The aim of this study was to evaluate factors associated with the recruitment of people with HIV (PWHIV) and their doctors to the HealthMap trial, a cluster randomised trial of an online self-management program. Methods: Recruitment involved a three-step process. Study sites were recruited, followed by doctors caring for PWHIV at study sites and finally PWHIV. Data wer...
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Published on Jan 1, 2019in Western Journal of Nursing Research 1.46
Yehudis Stokes2
Estimated H-index: 2
(U of O: University of Ottawa),
Amanda Digel Vandyk6
Estimated H-index: 6
(U of O: University of Ottawa)
+ 2 AuthorsWendy Gifford12
Estimated H-index: 12
(U of O: University of Ottawa)
Social media is an emerging tool used by researchers; however, limited information is available on its use for participant recruitment specifically. The purpose of this article is to describe the use of Facebook and LinkedIn social media sites in the recruitment of nurses for an online survey, using a 5-week modified online Dillman approach. Within 3 weeks, we exceeded our target sample size (n = 170) and within 5 weeks recruited 267 English-speaking nurses (n = 172, Facebook; n = 95, LinkedIn)....
1 Citations Source Cite
Published on Jan 1, 2019
Rupa S. Valdez10
Estimated H-index: 10
(UVA: University of Virginia),
Jessica Keim-Malpass9
Estimated H-index: 9
(UVA: University of Virginia)
Over the past decade, scholars have been able to actively engage with patients, informal caregivers, and providers through social media sites and patient-centered groups in ways that are reshaping patient-centered research design and recruitment. As with the introduction of any new technology, there exists both potential for new modes of inquiry and unforeseen ethical quandaries. This chapter presents researchers with the types of questions, ongoing points of debate, and nascent solutions releva...
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Published on Dec 1, 2018in BMC Health Services Research 1.93
Kathryn Berzins8
Estimated H-index: 8
(University of Leeds),
Gemma Louch3
Estimated H-index: 3
(Bradford Royal Infirmary)
+ 2 AuthorsJohn Baker22
Estimated H-index: 22
(University of Leeds)
Background Previous research into improving patient safety has emphasised the importance of responding to and learning from concerns raised by service users and carers. Expertise gained by the experiences of service users and their carers has also been seen as a potential resource to improve patient safety. We know little about the ease of raising concerns within mental health services, and the potential benefits of involving service users and carers in safety interventions. This study aimed to ...
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Published on Dec 1, 2018in The International Journal of Qualitative Methods 2.26
Cristen Dalessandro2
Estimated H-index: 2
(CU: University of Colorado Boulder)
While some research has explored the use of Craigslist or other digital technologies to recruit research participants, little social science research has reflected on how digital technologies and Internet websites might be useful specifically for recruiting millennials. In this article, I discuss attempts to recruit millennial study participants through both digital and nondigital methods. Based on these attempts, I come to the conclusion that because U.S. millennials’ social worlds are increasi...
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