Match!

Health Literacy: The Essential Catalyst for the Responsible and Effective Translation of Genome-Based Information for the Benefit of Population Health

Published on Jan 1, 2011in Public Health Genomics1.527
· DOI :10.1159/000324241
Kristine Sørensen16
Estimated H-index: 16
(UM: Maastricht University),
Helmut R. Brand31
Estimated H-index: 31
(UM: Maastricht University)
Abstract
The complexity and novelty of public health genomics poses a challenge to ensure effective and responsible translation of genome-based information for the benefit of population health. The aim of this article is to provide literature-based insight into how the concept of health literacy can act as a catalyst for the translation process and to comment on the necessity to adapt new perspectives in a rapidly changing world, such as e.g. the health literacy-friendly approach of Google. Taking advantage of the potential of health literacy in the population along with a recognized role of health professionals as knowledge brokers and ‘nudges’ will benefit the efficiency and responsibility of translating genome-based knowledge.
  • References (25)
  • Citations (19)
📖 Papers frequently viewed together
35 Citations
1,778 Citations
1 Citations
78% of Scinapse members use related papers. After signing in, all features are FREE.
References25
Newest
#1N. Rosenkötter (UM: Maastricht University)H-Index: 1
#2Hindrik VondelingH-Index: 14
Last. Angela Brand (Manipal University)H-Index: 17
view all 6 authors...
The European Union has named genomics as one of the promising research fields for the development of new health technologies. Major concerns with regard to these fields are, on the one hand, the rather slow and limited translation of new knowledge and, on the other hand, missing insights into the impact on public health and health care practice of those technologies that are actually introduced. This paper aims to give an overview of the major assessment instruments in public health [health tech...
25 CitationsSource
#1Muin J. Khoury (CDC: Centers for Disease Control and Prevention)H-Index: 94
In this commentary, I discuss how the promise of genomics and personalized medicine (GPM) is currently not matched by the evidence that supports its use in clinical practice. The mismatch between expectations and reality can be addressed by placing greater emphasis on multidisciplinary translation research and by stakeholder-driven collaboration that uses such research to address various and occasionally competing factors affecting the integration of genomic discoveries into clinical practice. C...
49 CitationsSource
#1Christopher H. Wade (NIH: National Institutes of Health)H-Index: 12
#2Colleen M. McBride (NIH: National Institutes of Health)H-Index: 54
Last. Lawrence C. Brody (NIH: National Institutes of Health)H-Index: 54
view all 4 authors...
Background: Translational research is needed to explore how people will respond to personal genetic susceptibility information related to common health conditions. Maximizing the rigor of this research will require that genetic test results be returned to study participants. Currently, there is no established method that guides the selection of genetic variants to be used in research with these objectives. Methods and Results: To address this question, we designed a process to identify gene vari...
24 CitationsSource
: Healthcare professionals believe that it is important for patients to be educated about health for optimal outcomes. For education to occur, healthcare professionals need to know where patients seek information. The concept of health information-seeking behavior (HISB) focuses on how patients obtain information (strategies/actions). Theories/ models are presented to describe how patients obtain information and what they do with information that is available. The most recent HISB research has e...
72 CitationsSource
SUMMARY ‘Health literacy’ refers to accessing, understanding and using information to make health decisions. However, despite its introduction into the World Health Organization’s Health Promotion Glossary, the term remains a confusing concept. We consider various definitions and measurements of health literacy in the international and Australian literature, and discuss the distinction between the broader concept of ‘health literacy’ (applicable to everyday life) and ‘medical literacy’ (related ...
213 CitationsSource
#1Stefania Boccia (UCSC: Catholic University of the Sacred Heart)H-Index: 40
#2Angela Brand (UM: Maastricht University)H-Index: 17
Last. Gualtiero Ricciardi (UCSC: Catholic University of the Sacred Heart)H-Index: 25
view all 4 authors...
Whereas medicine is currently undergoing remarkable developments from its morphological and phenotype orientation to a molecular and genotype orientation, promoting the importance of prognosis and prediction, the discussion about the role of genome-based information for epidemiological research and public health still is at the beginning. Public Health Genomics (PHG) contributes to this discussion by focussing on the use of genome-based information for epidemiological research, surveillance syst...
13 CitationsSource
#1Darcy A. Freedman (USC: University of South Carolina)H-Index: 13
#2Kimberly D. Bess (Vandy: Vanderbilt University)H-Index: 10
Last. Kenneth A. Wallston (Vandy: Vanderbilt University)H-Index: 61
view all 6 authors...
Abstract Public health literacy is an emerging concept necessary to understand and address the broad array of factors, such as climate change, globalization, and poverty, that influence the public's health. Whereas health literacy has traditionally been operationalized as an individual-level construct, public health literacy takes into account the complex social, ecologic, and systemic forces affecting health and well-being. However, public health literacy has not yet been fully articulated. Thi...
126 CitationsSource
#1H. Burton (Teesside University)H-Index: 1
#2M. Adams (Teesside University)H-Index: 1
Last. Peter Schröder-Bäck (UM: Maastricht University)H-Index: 9
view all 4 authors...
Public health genomics (PHG) relies on developing knowledge from a variety of natural and social science research disciplines to shape public policies, health policy, education and training, and direc
24 CitationsSource
#1Jeff JarvisH-Index: 1
What,s the question every business should be asking itself? According to Jeff Jarvis, it,s WHAT WOULD GOOGLE DO? If you,re not thinking or acting like Google - the fastest-growing company in the history of the world - then you,re not going to survive, let alone prosper, in the Internet age. An indispensable manual for survival and success that asks the most important question today,s leaders, in any industry, can ask themselves: What would Google do? To demonstrate how to emulate Google, Jarvis ...
109 Citations
#1Andrea J. Apter (UPenn: University of Pennsylvania)H-Index: 38
#2Michael K. Paasche-Orlow (BU: Boston University)H-Index: 44
Last. Rima E. Rudd (Harvard University)H-Index: 32
view all 8 authors...
Patient-centered interactive communication between physicians and patients is recommended to improve the quality of medical care. Numerical concepts are important components of such exchanges and include arithmetic and use of percentages, as well as higher level tasks like estimation, probability, problem-solving, and risk assessment - the basis of preventive medicine. Difficulty with numerical concepts may impede communication. The current evidence on prevalence, measurement, and outcomes relat...
96 CitationsSource
Cited By19
Newest
#1Kristine SørensenH-Index: 1
1 CitationsSource
#1Kristine SørensenH-Index: 16
1 CitationsSource
#1Hardaye R. Hansen (Borough of Manhattan Community College)H-Index: 2
#2Yuliya Shneyderman (Borough of Manhattan Community College)H-Index: 6
Last. Philip A. Belcastro (Borough of Manhattan Community College)H-Index: 4
view all 3 authors...
Background: There is a paucity of evidence associating health literacy metrics with adults' enhanced health knowledge, health status, health practices, or health behaviors. Purpose: Investigate whether health-literate undergraduates exhibit enhanced health knowledge, health status, health practices, or behaviors compared to non-health-literate cohorts. Methods A convenience sample of 362 urban undergraduates responded to (1) Short Test Functional Health Literacy in Adults, (2) Health Knowledge I...
3 CitationsSource
3 CitationsSource
Aims: For more than two decades genomic education of the public has been a significant challenge. As genomic information becomes integrated into daily life and routine clinical care, the need for public education is even more critical. We conducted a pilot study to learn how genomic researchers and ethical, legal, and social implications advisors who were affiliated with large-scale genomic variation studies have approached the issue of educating the public about genomics. Methods/Results: Semi-...
10 CitationsSource
#1Ernst Hafen (ETH Zurich)H-Index: 22
#2D. Kossmann (ETH Zurich)H-Index: 1
Last. Angela Brand (UM: Maastricht University)H-Index: 17
view all 3 authors...
Introduction: This article is part of a Focus Theme of Methods of Information in Medicine on Health Record Banking. Background: Healthcare is often ineffective and costs are steadily rising. This is in a large part due to the inaccessibility of medical and health data stored in multiple silos. Furthermore, in most cases molecular differences between individuals that result in different susceptibilities to drugs and diseases as well as targeted interventions cannot be taken into account. Technolo...
63 CitationsSource
#1Jonathan A. LalH-Index: 6
#2Anil Vaidya (UM: Maastricht University)H-Index: 4
Last. Angela BrandH-Index: 17
view all 5 authors...
We see a backlog in the effective and efficient integration of personalized medicine applications such as genome-based information and technologies into healthcare systems. This article aims to expand on the steps of a published innovative model, which addresses the bottleneck of real-time integration into healthcare. We present a deconstruction of the Learning-Adapting-Leveling model to simplify the steps. We found out that throughout the technology transfer pipeline, contacts, assessments and ...
6 CitationsSource
Biological complexity at a molecular and physiological level is dynamically translucent and requires a systemwide computational approach to possibly elucidate underlying mechanisms for medical and public health applications. Functional dynamics is ideal to study molecular functions given biological functions are dependent on the dynamic nature of networks it operates within. However, environmental factors significantly affect the molecular dynamics in biology, which still needs to be incorporate...
3 CitationsSource