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An exploration of the choices of patients with chronic kidney disease.

Published on Oct 1, 2014in Patient Preference and Adherence2.10
· DOI :10.2147/PPA.S60766
Sinead Keeney22
Estimated H-index: 22
,
Hugh McKenna37
Estimated H-index: 37
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Abstract
Background: Chronic kidney disease (CKD) is a progressive loss of renal function over a period of time. It is common, often unrecognized, and frequently coexists with other conditions, including diabetes and cardiovascular disease. There has been little research undertaken into treatment options and decision-making processes of CKD patients in general.Objectives: To determine the treatment options that CKD patients are offered and their views and experiences with regard to these choices.Design: A survey design was adopted.Participants: Participants included patients who had CKD at the time of the study and who were on renal dialysis.Results: A wide range of findings emerged from the study. Key findings showed that the majority of patients felt that written information was the main source of information, but that almost one-quarter of patients felt that they did not receive enough information about dialysis to allow them to make an informed choice. Almost one-fifth of participants did not consider that they had been strongly encouraged by health professionals to be independent with regard to their choice of dialysis.Conclusion: While the majority of patients feel fully informed and involved in the decision-making processes around treatment and management of their CKD, not all patients receive sufficient information to make an informed choice about their treatment and that treatment options are not always presented to patients and their families to enable them to make a fully informed choice.
  • References (26)
  • Citations (4)
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References26
Newest
Published on Jan 1, 2013in International Journal of Nursing Studies3.57
Lori Harwood2
Estimated H-index: 2
(UWO: University of Western Ontario),
Alexander M. Clark33
Estimated H-index: 33
(U of A: University of Alberta)
Abstract Objectives This systematic review examined how people with chronic kidney disease make decisions about the type of dialysis modality to use. In particular, meta-synthesis was used to understand the process of patient decision-making and how aspects of context influenced these decisions. This topic is important because home-dialysis has economic and quality of life advantages for patients and society but is underutilized. To increase the use of home-based dialysis services a greater unde...
Published on Jan 1, 2013in Journal of Renal Care
Lina Johansson2
Estimated H-index: 2
(Imperial College London)
SUMMARY Background Patient involvement through shared decision making is advocated to support patients deciding on a dialysis treatment suitable to their clinical condition, lifestyle and social circumstances. Evidence to date, however, suggests that shared decision making is far from routine practice. Not all physicians or patients are willing to participate in shared decision making. Equally, modality education does not always meet the needs of patients and their families, resulting in a signi...
Published on Jul 1, 2012in American Journal of Kidney Diseases6.65
Rachael L. Morton27
Estimated H-index: 27
(USYD: University of Sydney),
Paul Snelling24
Estimated H-index: 24
(RPA: Royal Prince Alfred Hospital)
+ 4 AuthorsKirsten Howard38
Estimated H-index: 38
(USYD: University of Sydney)
Background Dialysis modality preferences of patients with chronic kidney disease (CKD) and family caregivers are important, yet rarely quantified. Study Design Prospective, unlabeled, discrete-choice experiment with random-parameter logit analysis. Setting & Participants Adults with stages 3-5 CKD and caregivers educated about dialysis treatment options from 8 Australian renal clinics. Predictors Preferences for and trade-offs between the dialysis treatment attributes of life expectancy, number ...
Published on Apr 1, 2012in Nephrology Dialysis Transplantation4.20
Dimitrios Chanouzas3
Estimated H-index: 3
(HEFT: Heart of England NHS Foundation Trust),
Khai Ping Ng2
Estimated H-index: 2
(HEFT: Heart of England NHS Foundation Trust)
+ 1 AuthorsJyoti Baharani7
Estimated H-index: 7
(HEFT: Heart of England NHS Foundation Trust)
Background. There is little information on factors influencing patient choice of renal replacement modality (RRM) in the UK. Pre-dialysis education programmes have been associated with increased uptake of peritoneal dialysis (PD) in other countries but their relevance in informing patient choice within UK centres has not been extensively studied. In this study, we examined how patient choice of different treatment modalities [haemodialysis (HD), PD and conservative management (CM)] is influenced...
Published on Apr 1, 2011in Nephrology Dialysis Transplantation4.20
Rachael L. Morton27
Estimated H-index: 27
(USYD: University of Sydney),
Kirsten Howard38
Estimated H-index: 38
(USYD: University of Sydney)
+ 1 AuthorsPaul Snelling24
Estimated H-index: 24
(RPA: Royal Prince Alfred Hospital)
Background. Informed decision-making requires the presentation of all possible courses of action; however, it is unclear what proportion of Stage 5 chronic kidney disease (CKD) patients are routinely informed of all their treatment options. The aim of this study was to determine the effect of patient and unit characteristics on the type and timing of information provided. Methods. A prospective national multi-centre study of information was given to incident pre-emptive transplant, dialysis and ...
Published on Jan 19, 2010in BMJ27.60
Rachael L. Morton27
Estimated H-index: 27
(USYD: University of Sydney),
Allison Tong39
Estimated H-index: 39
(Children's Hospital at Westmead)
+ 2 AuthorsAngela C. Webster49
Estimated H-index: 49
(Children's Hospital at Westmead)
Objective To synthesise the views of patients and carers in decision making regarding treatment for chronic kidney disease, and to determine which factors influence those decisions. Design Systematic review of qualitative studies of decision making and choice for dialysis, transplantation, or palliative care, and thematic synthesis of qualitative studies. Data sources Medline, PsycINFO, CINAHL, Embase, social work abstracts, and digital theses (database inception to week 3 October 2008) to ident...
Published on Aug 1, 2009in Patient Education and Counseling2.82
Mary Ann Murray14
Estimated H-index: 14
(U of O: University of Ottawa),
Gillian Brunier8
Estimated H-index: 8
(Sunnybrook Health Sciences Centre)
+ 4 AuthorsDawn Stacey38
Estimated H-index: 38
(U of O: University of Ottawa)
Abstract Objective To identify factors influencing patient involvement in decision-making in the context of chronic kidney disease (CKD) and effective interventions to support their decision-making needs. Methods A systematic review included studies and decision support tools that involved: (1) adults with CKD, (2) studies published from 1998–2008; and (3) a focus on patient decision-making needs, and/or barriers and facilitators to shared decision-making. Studies were quality appraised. Results...
Published on Jul 16, 2008in Nephrology Dialysis Transplantation4.20
Anne Lee1
Estimated H-index: 1
(University of Southern Denmark),
Claire Gudex14
Estimated H-index: 14
(University of Southern Denmark)
+ 2 AuthorsCamilla Palmhøj Nielsen8
Estimated H-index: 8
(National Board of Health)
Background. Increasing patient numbers have resulted in pressureondialysiscentresandaneedtoreorganizedialysis treatment. This study explored patients’ experiences with different dialysis modalities and investigated issues related tothepatient’schoiceofmodality,especially‘out-of-centre’ dialysis (i.e. modalities other than CHD). Methods. Six focus group interviews were conducted with 24 dialysis patients, 3 pre-dialysis patients and 18 relatives. Each focus group comprised patients on one type of...
Published on Sep 1, 2007in Health Expectations2.85
Raisa B. Deber30
Estimated H-index: 30
(U of T: University of Toronto),
Nancy Kraetschmer6
Estimated H-index: 6
(Canada Health Infoway)
+ 1 AuthorsNatasha Sharpe4
Estimated H-index: 4
Background What role do people want to play in treatment decision-making (DM)? Objective Examine the role patients indicate they would prefer in making treatment decisions across multiple clinical settings in Ontario, Canada. Design Secondary analysis of a series of survey/interview-based studies measuring preferred role, conducted in 12 different populations. Setting and participants Respondents were outpatients, largely but not entirely attending outpatient clinics in large teaching hospitals ...
Published on Jul 7, 2007in BMJ27.60
Angela Coulter58
Estimated H-index: 58
(Picker Institute Europe),
Jo Ellins5
Estimated H-index: 5
(Warw.: University of Warwick)
Evidence that strategies to strengthen patient engagement are effective is substantial, argue Angela Coulter and Jo Ellins, but any strategy to reduce health inequalities must promote health literacy
Cited By4
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Published on Jun 7, 2019in Internal Medicine0.96
Masaki Ohya6
Estimated H-index: 6
(Wakayama Medical University),
Yuko Iwashita2
Estimated H-index: 2
(Wakayama Medical University)
+ 4 AuthorsTakashi Shigematsu28
Estimated H-index: 28
(Wakayama Medical University)
Published on Dec 1, 2017in Nephrology1.91
Leah Krischock (UNSW: University of New South Wales), Sean E. Kennedy13
Estimated H-index: 13
(UNSW: University of New South Wales),
Andrew Hayen30
Estimated H-index: 30
(UNSW: University of New South Wales)
Aim Improve the understanding of outcomes and complications of dialysis in Adolescents and Young Adults (AYA) to inform decisions about dialysis modality in this patient population. Methods Registry data on Australian AYA aged 13 to 20 years who commenced dialysis between 1/1/2000 and 31/12/2013 were retrieved from the Australia and New Zealand Dialysis and Transplantation Registry and analysed to determine associations between demographic characteristics, dialysis modality and outcomes. Results...
Published on Dec 1, 2016in American Journal of Kidney Diseases6.65
Claudia Dahlerus3
Estimated H-index: 3
(UM: University of Michigan),
Martha Quinn4
Estimated H-index: 4
(UM: University of Michigan)
+ 9 AuthorsMargie McCall2
Estimated H-index: 2
Background Little is known about factors that are important to patients with advanced kidney disease and their perspectives at the time they choose a dialysis modality. EPOCH-RRT, a study supported in part by the Patient-Centered Outcomes Research Institute (PCORI), was designed to assist patients with this choice by identifying such factors and effectively provide relevant information. Study Design Cross-sectional study, designed and conducted in collaboration with a multistakeholder advisory p...
Published on Jan 1, 2016in BioMed Research International2.20
Pei-Chun Chiang3
Estimated H-index: 3
,
Jia-Jeng Hou1
Estimated H-index: 1
(NCYU: National Chiayi University)
+ 4 AuthorsYueh-Han Hsu1
Estimated H-index: 1
Background. The purpose of this study was to analyze the factors associated with receiving peritoneal dialysis (PD) in patients with incident end-stage renal disease (ESRD) in a hospital in Southern Taiwan. Methods. The study included all consecutive patients with incident ESRD who participated in a multidisciplinary predialysis education (MPE) program and started their first dialysis therapy between January 1, 2008, and June 30, 2013, in the study hospital. We provided small group teaching sess...
Published on Oct 3, 2015in Expert Review of Vaccines4.53
Maria Bitsori15
Estimated H-index: 15
,
Emmanouil Galanakis24
Estimated H-index: 24
Individuals with chronic kidney disease (CKD) are vulnerable to vaccine-preventable infections due to impaired immunity, immunosuppressive treatments and dialysis. Protection of CKD patients by vaccination is hampered by reduced efficacy of vaccines and safety concerns for transplant candidates or recipients. ‘Cocooning’ vaccination policies, targeting the protection of a vulnerable individual through immunization of close contacts, have recently been introduced for infants and, to a lesser degr...
Published on Nov 16, 2013