Prioritizing Parental Worry Associated with Duchenne Muscular Dystrophy Using Best‐Worst Scaling

Duchenne muscular dystrophy (DMD) is a progressive, fatal pediatric disorder with significant burden on parents. Assessing disease impact can inform clinical interventions. Best‐worst scaling (BWS) was used to elicit parental priorities among 16 short‐term, DMD‐related worries identified through community engagement. Respondents viewed 16 subsets of worries, identified using a balanced, incomplete block design, and identified the most and least...