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BMC Medical Ethics
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The neurotechnology behind brain-computer interfaces (BCIs) raises various ethical questions. The ethical literature has pinpointed several issues concerning safety, autonomy, responsibility and accountability, psychosocial identity, consent, privacy and data security. This study aims to assess BCI users' experiences, self-observations and attitudes in their own right and looks for social and ethical implications. We conducted nine semi-structured interviews with BCI users, who used the technolo...
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#1Jennifer Ilo Van Nuil (University of Oxford)H-Index: 4
Last.Evelyne Kestelyn (University of Oxford)H-Index: 7
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Background Within the research community, it is generally accepted that consent processes for research should be culturally appropriate and tailored to the context, yet researchers continue to grapple with what valid consent means within specific stakeholder groups. In this study, we explored the consent practices and attitudes regarding essential information required for the consent process within hospital-based trial communities from four referral hospitals in Vietnam.
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#1Marlies SaelaertH-Index: 2
#2Heidi MertesH-Index: 10
Last.Ignaas DevischH-Index: 9
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Background: Incidental findings (IFs) and secondary findings (SFs), being results that are unrelated to the diagnostic question, are the subject of an important debate in the practice of clinical genomic medicine. Arguments for reporting these results or not doing so typically relate to the principles of autonomy, nonmaleficence and beneficence. However, these principles frequently conflict and are insufficient by themselves to come to a conclusion. This study investigates empirically how ethica...
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Organ donation is a life-saving process for patients suffering from an advanced organ failure. A disparity between donated organs and required organs for transplantation is one of the major problems in Iran. Since personal attitudes about organ donation is a main factor influencing willingness to donate organ, the present study sought to provide a deeper understanding of the attitudes of university students in Iran regarding organ donation. This qualitative study was conducted in 2016. Semi-stru...
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#1Bernadette Roest (University of Humanistic Studies)H-Index: 1
#2Margo Trappenburg (University of Humanistic Studies)H-Index: 11
Last.Carlo Leget (University of Humanistic Studies)H-Index: 15
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Family members do not have an official position in the practice of euthanasia and physician assisted suicide (EAS) in the Netherlands according to statutory regulations and related guidelines. However, recent empirical findings on the influence of family members on EAS decision-making raise practical and ethical questions. Therefore, the aim of this review is to explore how family members are involved in the Dutch practice of EAS according to empirical research, and to map out themes that could ...
1 CitationsSource
#1Iris D. Hartog (Radboud University Nijmegen)H-Index: 2
#2Dick L. Willems (UvA: University of Amsterdam)H-Index: 23
Last.Mirjam A. G. Sprangers (UvA: University of Amsterdam)H-Index: 63
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Background Patient-reported outcomes (PROs) are frequently used for medical decision making, at the levels of both individual patient care and healthcare policy. Evidence increasingly shows that PROs may be influenced by patients’ response shifts (changes in interpretation) and dispositions (stable characteristics).
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#1Shona Kalkman (UU: Utrecht University)H-Index: 5
#2Menno Mostert (UU: Utrecht University)H-Index: 3
Last.Ghislaine J.M.W. van Thiel (UU: Utrecht University)H-Index: 13
view all 5 authors...
Large-scale linkage of international clinical datasets could lead to unique insights into disease aetiology and facilitate treatment evaluation and drug development. Hereto, multi-stakeholder consortia are currently designing several disease-specific translational research platforms to enable international health data sharing. Despite the recent adoption of the EU General Data Protection Regulation (GDPR), the procedures for how to govern responsible data sharing in such projects are not at all ...
4 CitationsSource
#2Kate Gooding (LSTM: Liverpool School of Tropical Medicine)H-Index: 2
Last.Susan Bull (University of Oxford)H-Index: 16
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Background Paediatric research in low-income countries is essential to tackle high childhood mortality. As with all research, consent is an essential part of ethical practice for paediatric studies. Ethics guidelines recommend that parents or another proxy provide legal consent for children to participate, but that children should be involved in the decision through providing assent. However, there remain uncertainties about how to judge when children are ready to give assent and about appropria...
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#1Henriette Bruun (University of Southern Denmark)H-Index: 1
#2Reidar Pedersen (University of Oslo)H-Index: 21
Last.Lotte Huniche (University of Southern Denmark)H-Index: 9
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Background An ethics reflection group (ERG) is one of a range of ethics support services developed to better handle ethical challenges in healthcare. The aim of this article is to evaluate the implementation process of interdisciplinary ERGs in psychiatric and general hospital departments in Denmark. To our knowledge, this is the first study of ERG implementation to include both psychiatric and general hospital departments.
1 CitationsSource
#1Angus Dawson (USYD: University of Sydney)H-Index: 18
#2Sapfo Lignou (University of Oxford)H-Index: 3
Last.Dónal P. O’Mathúna (DCU: Dublin City University)H-Index: 15
view all 4 authors...
Research ethics is an integral part of research, especially that involving human subjects. However, concerns have been expressed that research ethics has come to be seen as a procedural concern focused on a few well-established ethical issues that researchers need to address to obtain ethical approval to begin their research. While such prospective review of research is important, we argue that it is not sufficient to address all aspects of research ethics. We propose retrospective review as an ...
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Philosophy of medicine
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