BMC Medical Ethics
Papers 831
1 page of 84 pages (831 results)
#1Iris D. Hartog (Radboud University Nijmegen)H-Index: 2
#2Dick L. Willems (UvA: University of Amsterdam)H-Index: 23
Last.Mirjam A. G. Sprangers (UvA: University of Amsterdam)H-Index: 63
view all 9 authors...
Background Patient-reported outcomes (PROs) are frequently used for medical decision making, at the levels of both individual patient care and healthcare policy. Evidence increasingly shows that PROs may be influenced by patients’ response shifts (changes in interpretation) and dispositions (stable characteristics).
Organ donation is a life-saving process for patients suffering from an advanced organ failure. A disparity between donated organs and required organs for transplantation is one of the major problems in Iran. Since personal attitudes about organ donation is a main factor influencing willingness to donate organ, the present study sought to provide a deeper understanding of the attitudes of university students in Iran regarding organ donation. This qualitative study was conducted in 2016. Semi-stru...
#1Bernadette Roest (University of Humanistic Studies)H-Index: 1
#2Margo Trappenburg (University of Humanistic Studies)H-Index: 11
Last.Carlo Leget (University of Humanistic Studies)H-Index: 15
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Family members do not have an official position in the practice of euthanasia and physician assisted suicide (EAS) in the Netherlands according to statutory regulations and related guidelines. However, recent empirical findings on the influence of family members on EAS decision-making raise practical and ethical questions. Therefore, the aim of this review is to explore how family members are involved in the Dutch practice of EAS according to empirical research, and to map out themes that could ...
1 CitationsSource
#1Angus Dawson (USYD: University of Sydney)H-Index: 18
#2Sapfo Lignou (University of Oxford)H-Index: 3
Last.Dónal P. O’Mathúna (DCU: Dublin City University)H-Index: 15
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Research ethics is an integral part of research, especially that involving human subjects. However, concerns have been expressed that research ethics has come to be seen as a procedural concern focused on a few well-established ethical issues that researchers need to address to obtain ethical approval to begin their research. While such prospective review of research is important, we argue that it is not sufficient to address all aspects of research ethics. We propose retrospective review as an ...
#1Shona Kalkman (UU: Utrecht University)H-Index: 5
#2Menno Mostert (UU: Utrecht University)H-Index: 3
Last.Ghislaine J.M.W. van Thiel (UU: Utrecht University)H-Index: 13
view all 5 authors...
Large-scale linkage of international clinical datasets could lead to unique insights into disease aetiology and facilitate treatment evaluation and drug development. Hereto, multi-stakeholder consortia are currently designing several disease-specific translational research platforms to enable international health data sharing. Despite the recent adoption of the EU General Data Protection Regulation (GDPR), the procedures for how to govern responsible data sharing in such projects are not at all ...
4 CitationsSource
#2Kate Gooding (LSTM: Liverpool School of Tropical Medicine)H-Index: 2
Last.Susan Bull (University of Oxford)H-Index: 16
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Background Paediatric research in low-income countries is essential to tackle high childhood mortality. As with all research, consent is an essential part of ethical practice for paediatric studies. Ethics guidelines recommend that parents or another proxy provide legal consent for children to participate, but that children should be involved in the decision through providing assent. However, there remain uncertainties about how to judge when children are ready to give assent and about appropria...
#1Karolina Strzebonska (Jagiellonian University Medical College)H-Index: 2
#2Marcin Waligóra (Jagiellonian University Medical College)H-Index: 8
Novel precision oncology trial designs, such as basket and umbrella trials, are designed to test new anticancer agents in more effective and affordable ways. However, they present some ethical concerns referred to scientific validity, risk-benefit balance and informed consent. Our aim is to discuss these issues in basket and umbrella trials, giving examples of two ongoing cancer trials: NCI-MATCH (National Cancer Institute – Molecular Analysis for Therapy Choice) and Lung-MAP (Lung Cancer Master...
#1Henriette Bruun (University of Southern Denmark)H-Index: 1
#2Reidar Pedersen (University of Oslo)H-Index: 21
Last.Lotte Huniche (University of Southern Denmark)H-Index: 9
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Background An ethics reflection group (ERG) is one of a range of ethics support services developed to better handle ethical challenges in healthcare. The aim of this article is to evaluate the implementation process of interdisciplinary ERGs in psychiatric and general hospital departments in Denmark. To our knowledge, this is the first study of ERG implementation to include both psychiatric and general hospital departments.
1 CitationsSource
#1Marco Di Paolo (UniPi: University of Pisa)H-Index: 11
#2Federica Gori (UniPi: University of Pisa)H-Index: 1
Last.Emanuela Turillazzi (UniPi: University of Pisa)H-Index: 27
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In December 2017, Law 219/2017, ‘Provisions for informed consent and advance directives’, was approved in Italy. The law is the culmination of a year-long process and the subject of heated debate throughout Italian society. Contentious issues (advance directives, the possibility to refuse medical treatment, the withdrawal of medical treatment, nutrition and hydration) are addressed in the law. What emerges clearly are concepts such as quality of life, autonomy, and the right to accept or refuse ...
1 CitationsSource
#1Dan Kabonge Kaye (Johns Hopkins University)
#2Gershom Chongwe (UNZA: University of Zambia)
Last.Nelson K. Sewankambo (College of Health Sciences, Bahrain)H-Index: 65
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There is unanimous agreement regarding the need to ethically conduct research for improving therapy for patients admitted to hospital with acute conditions, including in emergency obstetric care. We present a conceptual analysis of ethical tensions inherent in the informed consent process for randomized clinical trials for emergency obstetric care and suggest ways in which these could be mitigated. A valid consenting process, leading to an informed consent, is a cornerstone of this aspect necess...
Top fields of study
Philosophy of medicine
Family medicine
Informed consent