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The Patient: Patient-Centered Outcomes Research
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#1Matthew Anstey (Curtin University)H-Index: 8
#2Imogen Mitchell (ANU: Australian National University)H-Index: 18
Last.Richard Norman (Curtin University)H-Index: 21
view all 4 authors...
Many patients in the intensive care unit are too unwell to participate in shared decision making or have not previously documented their wishes. In these situations, understanding the values of the general population could help doctors provide appropriate guidance to surrogate decision makers. Using a discrete choice experiment design, we conducted an online survey using an Australian panel. Participants were asked about their willingness to accept treatments, faced with a variety of possible ou...
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#1José L. PablosH-Index: 37
#2Juan Ángel Jover (Hospital Clínico San Carlos)H-Index: 17
Last.Luis LizánH-Index: 13
view all 8 authors...
Objectives The aim of this study was to develop and assess the effectiveness of a patient decision aid (PDA) to support treatment decision making in Spanish patients with moderate-to-severe rheumatoid arthritis (RA) who fail to achieve the therapeutic goal with the current disease-modifying antirheumatic treatment strategy.
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#1Nabin Poudel (AU: Auburn University)
#2Jan Kavookjian (AU: Auburn University)H-Index: 12
view all 3 authors...
Background Heart failure (HF) hospitalization is an expensive healthcare utilization event. Motivational interviewing (MI) has been studied for effects on HF self-management behaviors.
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#1Maureen George (Columbia University)H-Index: 16
#2Adriana Arcia (Columbia University)H-Index: 5
Last.Jean-Marie Bruzzese (Columbia University)H-Index: 14
view all 5 authors...
Background and Objective Inhaled corticosteroids (ICS) reduce asthma-related morbidity and mortality. However, ICS non-adherence is more common in African American (AA) adults than White adults and explains, in part, the marked asthma disparities that AAs experience. We aimed to understand how ICS non-adherence could be addressed from the perspective of AA adults with asthma, their family, and friends.
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#1Rebecca CrawfordH-Index: 2
#2Kate Sully (Adelphi University)H-Index: 1
Last.Adam Gater (Adelphi University)H-Index: 8
view all 9 authors...
Expectations relating to treatment and survival, and factors influencing treatment decisions are not well understood in adult patients with acute myeloid leukemia. This study analyzed combined findings from a targeted literature review with patient-reported information shared on YouTube to further understand patient perspectives in hematologic cancers and, in particular, acute myeloid leukemia. The targeted literature review included articles concerning patient (aged ≥ 18 years) experiences or p...
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#1Dan Rigby (University of Manchester)H-Index: 28
#2C. Vass (University of Manchester)H-Index: 7
Last.Katherine Payne (University of Manchester)H-Index: 34
view all 3 authors...
The desire to understand the preferences of patients, healthcare professionals and the public continues to grow. Health valuation studies, often in the form of discrete choice experiments, a choice based survey approach, proliferate as a result. A variety of methods of pre-choice process analysis have been developed to investigate how and why people make their decisions in such experiments and surveys. These techniques have been developed to investigate how people acquire and process information...
1 CitationsSource
#1Myriam Gagné (Laval University)H-Index: 2
#2Sophie Lauzier (Laval University)H-Index: 11
Last.Louis-Philippe Boulet (Laval University)H-Index: 2
view all 8 authors...
Background There is a necessity to better document the effect of continuing education activities targeted at respiratory educators providing self-management support for patients with chronic obstructive pulmonary disease (COPD). We therefore sought to describe real-life COPD-specific self-management support delivered by respiratory educators who participated in a lecture-based continuing education activity and assess the outcomes of patients with COPD.
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#1Edouard Louis (University of Liège)H-Index: 63
Last.Kerri L. Novak (U of C: University of Calgary)H-Index: 13
view all 17 authors...
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#1Shane Sinclair (U of C: University of Calgary)H-Index: 16
#2Priya Jaggi (U of C: University of Calgary)
Last.Carlo Leget (University of Humanistic Studies)H-Index: 15
view all 8 authors...
Although compassionate care is considered a cornerstone of quality palliative care, there is a paucity of valid and reliable measures to study, assess, and evaluate how patients experience compassion/compassionate care in their care. The aim was to develop a patient-reported compassion measure for use in research and clinical practice with established content-related validity evidence for the items, question stems, and response scale. Content validation for an initial 109 items was conducted thr...
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#1Diane M. Turner-Bowker (Adelphi University)H-Index: 3
#2A. Yaworsky (Adelphi University)H-Index: 3
Last.J Loftus (Pfizer)H-Index: 6
view all 9 authors...
Background Current recombinant human growth hormone (r-hGH) replacement therapy involves long-term daily subcutaneous injections to treat growth hormone deficiency (GHD) in children and adults. Daily r-hGH injections can be burdensome, often resulting in poor treatment compliance. Clinical outcome assessments (COAs) can capture the burden of these injections from the patient (and caregiver) perspective and may demonstrate the benefit of a less-frequent r-hGH injection regimen, which may ultimate...
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