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Claire Johnson Dc MSEd
National University of Health Sciences
431Publications
39H-index
8,791Citations
Publications 431
Newest
#1Joseph M. Herman (Johns Hopkins University)H-Index: 55
#2H. KitchenH-Index: 6
Last.Claire Johnson Dc MSEd (University of Southampton)H-Index: 39
view all 8 authors...
Purpose Pancreatic cancer and its treatments impact patients’ symptoms, functioning, and quality of life. Content-valid patient-reported outcome (PRO) instruments are required to assess outcomes in clinical trials. This study aimed to: (a) conceptualise the patient experience of pancreatic cancer; (b) identify relevant PRO instruments; (c) review the content validity of mapped instruments to guide PRO measurement in clinical trials.
1 CitationsSource
#2D. KulisH-Index: 2
Last.Mogens GrønvoldH-Index: 2
view all 9 authors...
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#1Briar McKenzieH-Index: 2
Last.Jacqui WebsterH-Index: 21
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Background: The burden of non-communicable diseases (NCDs) is increasing in low-to middleincomecountries (LMIC), increasing disproportionately for women in LMIC compared to women inhigh income countries. [...]
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#2Briar McKenzieH-Index: 2
Last.Jacqui WebsterH-Index: 21
view all 10 authors...
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#1Gregor Liegl (Humboldt University of Berlin)H-Index: 8
#2Morten Aagaard Petersen (Bispebjerg Hospital)H-Index: 17
Last.Sandra Nolte (Humboldt University of Berlin)H-Index: 29
view all 14 authors...
Abstract Objective The computer-adaptive test (CAT) of the European Organisation for Research and Treatment of Cancer (EORTC), the EORTC CAT Core, assesses the same 15 domains as the EORTC QLQ-C30 health-related quality of life questionnaire but with increased precision, efficiency, measurement range and flexibility. CAT parameters for estimating scores have been established based on clinical data from cancer patients. This study aimed at establishing the European Norm for each CAT domain based ...
2 CitationsSource
#1Michael KollerH-Index: 1
Last.A. BottomleyH-Index: 3
view all 24 authors...
#1Claire Johnson Dc MSEd (University Hospital Southampton NHS Foundation Trust)H-Index: 39
#2Nicola Williamson (Adelphi University)H-Index: 4
Last.Markus M. LerchH-Index: 76
view all 11 authors...
Abstract Background/objectives Pancreatic exocrine insufficiency (PEI) is commonly caused by chronic pancreatitis (CP) or cystic fibrosis (CF). There are no PEI-specific patient-reported assessments of symptoms and impacts. The PEI Questionnaire (PEI-Q) was developed through qualitative research with PEI patients and expert clinical input. This study evaluated the psychometric properties of the PEI-Q. Methods 162 PEI patients (CF = 71 and CP = 91), 62 diarrhoea-specific irritable bowel syndrome ...
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#1Sandra Nolte (Humboldt University of Berlin)H-Index: 29
#2Gregor Liegl (Humboldt University of Berlin)H-Index: 8
Last.Matthias Rose (Humboldt University of Berlin)H-Index: 35
view all 14 authors...
Abstract Objective The European Organisation for Research and Treatment of Cancer (EORTC) QLQ-C30 health-related quality of life questionnaire is one of the most widely used cancer-specific health-related quality of life questionnaires worldwide. General population norm data can facilitate the interpretation of QLQ-C30 data obtained from cancer patients. This study aimed at systematically collecting norm data from the general population to develop European QLQ-C30 norm scores and to generate com...
8 CitationsSource
#1Marieke van Leeuwen (NKI-AVL: Netherlands Cancer Institute)H-Index: 15
#2HussonOlga (Radboud University Nijmegen)H-Index: 16
Last.Lonneke V. van de Poll-Franse (Tilburg University)H-Index: 46
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Backround The number of cancer survivors is growing steadily and increasingly, clinical trials are being designed to include long-term follow-up to assess not only survival, but also late effects and health-related quality of life (HRQOL). Therefore it is is essential to develop patient-reported outcome measures (PROMs) that capture the full range of issues relevant to disease-free cancer survivors. The objectives of this project are: 1) to develop a European Organisation for Research and Treatm...
17 CitationsSource
#1Monika Sztankay (Innsbruck Medical University)H-Index: 7
#2Neil K. Aaronson (NKI-AVL: Netherlands Cancer Institute)H-Index: 98
Last.Bernhard Holzner (Innsbruck Medical University)H-Index: 35
view all 13 authors...
Background Given the high cure-rate for testicular cancer (TC) and the patients’ young age, comprehensive evaluation of health-related quality of life (HRQOL) is an important consideration in this patient population. The EORTC QLQ-TC26 questionnaire module has been developed to supplement the EORTC QLQ-C30 in assessing TC-specific HRQOL in clinical trials and routine clinical practice. This international, multicentre phase IV validation study evaluated the psychometric properties of the new modu...
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