H. Kitchen
Adelphi University
Publications 34
#1Joseph M. Herman (Johns Hopkins University)H-Index: 55
#2H. KitchenH-Index: 6
Last.Claire Johnson Dc MSEd (University of Southampton)H-Index: 39
view all 8 authors...
Purpose Pancreatic cancer and its treatments impact patients’ symptoms, functioning, and quality of life. Content-valid patient-reported outcome (PRO) instruments are required to assess outcomes in clinical trials. This study aimed to: (a) conceptualise the patient experience of pancreatic cancer; (b) identify relevant PRO instruments; (c) review the content validity of mapped instruments to guide PRO measurement in clinical trials.
#1Arnold Degboe (AstraZeneca)H-Index: 1
#2Sarah L. KnightH-Index: 1
Last.Simon N. RogersH-Index: 1
view all 9 authors...
Head and neck squamous cell carcinoma (HNSCC) and its associated treatments may affect all aspects of patients’ health-related quality of life (HRQoL). Although the EORTC QLQ-HN patient quotes were coded to identify concepts and themes to develop a conceptual model of HNSCC experience. Fourteen patients were interviewed (71% male, aged 35–84 years). Patients reported few symptoms pre-diagnosis including neck lump/swelling (n = 7/14, 50%) and/or difficulty swallowing (n = 3/14, 21%). Treatments g...
#1Louise HumphreyH-Index: 8
#2T.G. WillgossH-Index: 12
Last.H. KitchenH-Index: 6
view all 7 authors...
The Food and Drug Administration patient-reported outcome (PRO) guidance provides standards for PRO development, but these standards bring scientific and logistical challenges which can result in a lengthy and expensive instrument development process. Thus, more pragmatic methods are needed alongside traditional approaches. Partnering with the National Ankylosing Spondylitis (AS) Society, we compared three methods for eliciting patient experiences: 1) concept elicitation (CE) interviews with 12 ...
#1Nandu Thalange (NNUH: Norfolk and Norwich University Hospital)H-Index: 9
#2Natalie AldhouseH-Index: 1
Last.Jonas Håkan-Bloch (Novo Nordisk)H-Index: 3
view all 6 authors...
Introduction Ketosis is a metabolic state associated with insulin deficiency. Untreated, it develops into diabetic ketoacidosis, a significant contributor to mortality and morbidity in people with type 1 diabetes mellitus (T1DM). Little is understood about how patients utilize healthcare resources during ketosis events. This study aimed to identify and quantify healthcare resource utilization and provide estimates of associated costs of ketosis events in T1DM, treated unaided or with healthcare ...