Deborah J. Bowen
University of Washington
Publications 476
#1Madina Agénor (Fenway Health)H-Index: 11
#2Gabriel R. Murchison (Harvard University)H-Index: 1
Last.S. B. Austin (Harvard University)H-Index: 53
view all 7 authors...
#1Ginger J. Tsai (UW: University of Washington)H-Index: 1
#2Annie T. Chen (UW: University of Washington)H-Index: 10
Last.Brian H. Shirts (UW: University of Washington)H-Index: 24
view all 6 authors...
#1Yelena P. Wu (UofU: University of Utah)H-Index: 19
#2Kenneth M. Boucher (UofU: University of Utah)H-Index: 38
Last.Kenneth P. Tercyak (Georgetown University)H-Index: 34
view all 13 authors...
2 CitationsSource
Digital family health history tools have been developed but few have been tested with non-English speakers and evaluated for acceptability and usability. This study describes the cultural and linguistic adaptation and evaluation of a family health history tool (VICKY: VIrtual Counselor for Knowing Your Family History) for Spanish speakers. In-depth interviews were conducted with 56 Spanish-speaking participants; a subset of 30 also participated in a qualitative component to evaluate the acceptab...
#1Nadine Rayes (University of Texas MD Anderson Cancer Center)
#2Deborah J. Bowen (UW: University of Washington)H-Index: 61
Last.Karen H. Lu (University of Texas MD Anderson Cancer Center)H-Index: 66
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Studies have consistently indicated that the majority of individuals meeting the US Prevention Services Task Force guidelines for genetic testing have not had genetic counseling or testing. Despite increased availability and lower costs of multiplex cancer gene panels, there remains a gap in genetics services that has not been addressed by the current care delivery models. Lower cost of DNA sequencing with online patient-initiated ordering could increase test availability, but the ideal quantity...
#1Deborah J. Bowen (UW: University of Washington)H-Index: 61
#2Eileen Huh Shinn (University of Texas MD Anderson Cancer Center)H-Index: 12
Last.Antonio C. Wolff (Johns Hopkins University)H-Index: 65
view all 14 authors...
#1Melody S. Goodman (NYU: New York University)H-Index: 18
#2Nicole Ackermann (WashU: Washington University in St. Louis)H-Index: 3
Last.Vetta L. Sanders Thompson (WashU: Washington University in St. Louis)H-Index: 20
view all 4 authors...
1 CitationsSource
#1Deborah J. BowenH-Index: 61
#1Sarah Nelson (UW: University of Washington)H-Index: 23
#2Deborah J. Bowen (UW: University of Washington)H-Index: 61
Last.Stephanie M. Fullerton (UW: University of Washington)H-Index: 34
view all 3 authors...
In an effort to meet ethical obligations and/or participant expectations, researchers may consider offering "raw" or uninterpreted genetic data for result return. It is therefore important to understand the motivations, behaviors, and perspectives of individuals who might choose to access raw data before such return becomes routine. In the direct-to-consumer (DTC) context, where raw data are often made available to customers, the use of third-party interpretation tools has raised concerns about ...
5 CitationsSource