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Gry Velvin
Oslo and Akershus University College of Applied Sciences
Quality of lifeEndocrinologyPhysical therapyMarfan syndromeChronic pain
7Publications
5H-index
74Citations
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Publications 9
Newest
#2Trine BathenH-Index: 6
Last. Gry VelvinH-Index: 5
view all 4 authors...
AIM: The present study aimed to map and summarise the research on children, aged 0-18 years, with Marfan syndrome, identify research gaps and point to research agendas. METHODS: A scoping review was systematically performed by searching multiple databases from January 1996 to April 2019. Primary studies presenting results on at least six individuals aged 0-18 years with Marfan syndrome, diagnosed according to the Ghent nosology, were selected. RESULTS: From 2341 de-duplicated records, 92 papers ...
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The aim is to study adults with vascular Ehlers-Danlos syndrome (vEDS) and Loeys-Dietz syndrome (LDS) with regard to sociodemographic characteristics, perceived vascular- and multi-organ symptom burdens, and health services utilization. This is a cross-sectional study. In 2018, a postal questionnaire was sent to 71 individuals with genetically verified LDS types 1-4 or vEDS, age >/= 18 years, recruited through a National Resource Centre for Rare Disorders in Norway. Eighteen patients with vEDS a...
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#1Gry VelvinH-Index: 5
Last. Amy Østertun Geirdal (University of Oslo)H-Index: 9
view all 5 authors...
1 CitationsSource
#1Gry VelvinH-Index: 5
Last. Amy Østertun GeirdalH-Index: 9
view all 5 authors...
Source
#1Gry Velvin (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 5
#2Trine BathenH-Index: 6
Last. Amy Østertun Geirdal (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 9
view all 4 authors...
The purpose of this study was to explore the literature on chronic pain in adults with Marfan syndrome (MFS), critically appraising and synthesizing relevant literature. A systematic review was conducted by searching the published literature databases using available medical, physical, psychological, social databases and other sources. All studies that addressed pain in MFS, published in peer-reviewed journals were assessed. Of 351 search results, 18 articles satisfied the eligibility criteria. ...
10 CitationsSource
#1Gry Velvin (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 5
#2Trine BathenH-Index: 6
Last. Amy Østertun Geirdal (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 9
view all 4 authors...
Purpose The objective with this study was to explore satisfaction with life (SWL) among adults with Marfan syndrome (MFS) compared to the general Norwegian population and other patient groups and further to examine the associations between SWL and demographic factors, contact with social and health services, MFS-related health problems, chronic pain, and fatigue.
9 CitationsSource
#1Gry Velvin (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 5
#2Trine BathenH-Index: 6
Last. Amy Østertun Geirdal (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 9
view all 4 authors...
Marfan syndrome (MFS) is a severe autosomal dominant connective tissue disorder that might influence peoples work ability. This cross sectional study aims to investigate work participation in adults with verified MFS diagnosis and to explore how the health related consequences of MFS and other factors might influence work participation. The prevalence of health problems in young adults compared to older adults with MFS was examined in association to work participation. A postal questionnaire inc...
14 CitationsSource
#1Gry Velvin (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 5
#2Trine BathenH-Index: 6
Last. Amy Østertun Geirdal (HiOA: Oslo and Akershus University College of Applied Sciences)H-Index: 9
view all 4 authors...
The purpose of this study was to explore the literature on the psychosocial aspects of Marfan syndrome (MFS), to critically appraise and to synthesize relevant literature. A mixed-method systematic review was performed by searching the published literature databases using available medical, psychological, pedagogical and social databases and other sources. All studies that addressed psychosocial aspects of MFS, published in peer-reviewed journals were assessed. Of 81 search results, 15 articles ...
21 CitationsSource
This study aims to investigate how fatigue affects adults with verified Marfan syndrome (MFS) in their daily lives, by examining fatigue levels and prevalence of severe fatigue compared to the general Norwegian population and individuals with other comparable chronic conditions. We investigated associations between socio-demographic characteristics, Marfan-related health problems, pain and fatigue. A cross-sectional study was conducted, using a postal questionnaire including the Fatigue Severity...
19 CitationsSource
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